MS is Chronic Introduction
MS is CHRONIC18 Elo 2024

MS is Chronic Introduction

Hi there, I'm Barney Black and I was diagnosed with Relapsing Remitting Multiple Sclerosis in 2017.

Since then I have shared some of my story on Youtube UC-3c5PTy1a5QYwiLEBvNdhQ

Now it's time for other voices to be heard which is the motivation behind this podcast.

A little bit of science:

The estimates suggest that over 130,000 people in the UK live with MS and that number is rising.

There is no cure but there are over a dozen treatments available on the NHS for replapsing remitting MS. Nothing yet for Progressive MS.

There are many support groups across the UK and at local levels which I have found to be useful.

The people I have found of most value are those with the condition. Because they just get it. They know and understand when you describe the MS Hug is more like being crushed or similar to a heart attack. That fatigue isn't just being tired, it's like running a battery on 15% expecting 100% performance. And that's just before getting out of bed.

They also understand it's such a variable disease and that our common ground is that we have MS. But that we all have our own flavour of MS.

In these 6 episodes you will hear optimism, fear, hope, stoicism and ambitions for the future. What I know you will hear is the authenticity in each person's story.

Thanks for listening,

Barney

Jaksot(16)

Dear Diary...Extracts from my journal written pre and post MS diagnosis 2017

Dear Diary...Extracts from my journal written pre and post MS diagnosis 2017

Warning to those who are offended easily - there is a fair bit of swearing in this episode.   The latest guest to join the MS Podcast is...........me! The episode is about 20 minutes long as it covers...

14 Marras 202524min

MS is Chronic Season 3: Episode 2 Trishna Bharadia

MS is Chronic Season 3: Episode 2 Trishna Bharadia

Welcome to MS is Chronic.  Now into Season 3 and another fabulous guest. Trishna Bharadia MFPM(hon) Multi Award-Winning Patient Leader and Patient Engagement Professional. Trishna will be familiar to ...

2 Elo 20251h 11min

Season 3 - Episode 1: Ben Parker

Season 3 - Episode 1: Ben Parker

Thank-you for dropping in to this latest episode of MS is Chronic. Season 3: episode 1 https://open.spotify.com/show/5LVRa7QkIUIgnoU2nVTmpb?si=69540d7b470a462e First a request from me to you 😊 Pleas...

31 Touko 20251h 40min

Season 2 - Episode 6: Bev Malcolm: "Just a lassie from Lancashire"

Season 2 - Episode 6: Bev Malcolm: "Just a lassie from Lancashire"

Thank-you for choosing to listen to the latest episode of MS is Chronic. This is season 2 episode 6. With a fabulous guest Bev Malcolm. I met Bev through the MS Society Perth and Kinross group. And we...

2 Huhti 20251h 12min

Season 2 - Episode 5: The MS Guide aka Dominic Shadbolt

Season 2 - Episode 5: The MS Guide aka Dominic Shadbolt

Welcome to the latest episode of MS is Chronic. I have had the great pleasure of being joined by TheMSGuide - Dominic Shadbolt.  Dominic has been prolific in the MS Community for many years. Diagnosed...

9 Maalis 202549min

Season 2 - Episode 4: Karen Ablett

Season 2 - Episode 4: Karen Ablett

Welcome to MS is Chronic. In this latest episode you'll get to hear from the wonderful Karen Ablett. Karen's bio describes her as ahappy, chatty, POSITIVE person who loves life and believes ANYTHING I...

2 Joulu 20241h 28min

Season 2 - Episode 3: Matt Lloyd (Paralympian)

Season 2 - Episode 3: Matt Lloyd (Paralympian)

Welcome to MS is Chronic. This episodes guest is the wonderful Matt Lloyd. The best way to describe Matt is that he has too many strings for one bow. Born with spina bifida, paralympian, Olympic torch...

13 Loka 20241h 16min

Season 2 - Episode 2: Claire Cameron

Season 2 - Episode 2: Claire Cameron

Hello and welcome to MS is Chronic. In this latest episode I was joined by the fabulous Claire Cameron who shares her personal and professional story. This is a great listen and like me I'm sure you'l...

12 Loka 20241h 21min

Suosittua kategoriassa Yhteiskunta

olipa-kerran-otsikko
siita-on-vaikea-puhua
kaksi-aitia
gogin-ja-janin-maailmanhistoria
i-dont-like-mondays
joku-tietaa-jotain-2
uutiscast
poks
antin-palautepalvelu
kolme-kaannekohtaa
aikalisa
sita
yopuolen-tarinoita-2
mamma-mia
rss-murhan-anatomia
meidan-pitais-puhua
lahko
rss-nikotellen
ootsa-kuullut-tasta-2
loukussa