MS is Chronic Introduction
MS is CHRONIC18 Elo 2024

MS is Chronic Introduction

Hi there, I'm Barney Black and I was diagnosed with Relapsing Remitting Multiple Sclerosis in 2017.

Since then I have shared some of my story on Youtube UC-3c5PTy1a5QYwiLEBvNdhQ

Now it's time for other voices to be heard which is the motivation behind this podcast.

A little bit of science:

The estimates suggest that over 130,000 people in the UK live with MS and that number is rising.

There is no cure but there are over a dozen treatments available on the NHS for replapsing remitting MS. Nothing yet for Progressive MS.

There are many support groups across the UK and at local levels which I have found to be useful.

The people I have found of most value are those with the condition. Because they just get it. They know and understand when you describe the MS Hug is more like being crushed or similar to a heart attack. That fatigue isn't just being tired, it's like running a battery on 15% expecting 100% performance. And that's just before getting out of bed.

They also understand it's such a variable disease and that our common ground is that we have MS. But that we all have our own flavour of MS.

In these 6 episodes you will hear optimism, fear, hope, stoicism and ambitions for the future. What I know you will hear is the authenticity in each person's story.

Thanks for listening,

Barney

Jaksot(16)

Season 2 - Episode 1: Brian Loeffel

Season 2 - Episode 1: Brian Loeffel

Welcome to MS is Chronic. Multiple sclerosis (MS) is a condition that affects nerves in your central nervous system. That's your brain and spinal cord. In MS, the coating (myelin) that protects your n...

12 Loka 20241h 2min

Season 1 - Episode 6: Kris Mackie

Season 1 - Episode 6: Kris Mackie

This seems like a fortuitous and appropriate way to end Season 1. I met Kris Mackie a couple of months ago at the Perth and Kinross Coffee evening  https://www.facebook.com/profile.php?id=100076069987...

18 Elo 20241h 46min

Season 1 - Episode 5: Mavis Mctaggart

Season 1 - Episode 5: Mavis Mctaggart

I was lucky to have a cup of tea with Mavis while I was holidaying on the Isle of Islay, off the West Coast of Scotland.  Mavis shares what it is like to be in a lovely but remote part of the world wh...

18 Elo 20241h 18min

Season 1 - Episode 4: Dean Riley

Season 1 - Episode 4: Dean Riley

https://youtu.be/gknn1QmdHCY?si=E6i2Fmh1eRtvWpzH Dean Riley is an inspiration. In this episode you'll hear how he takes life head on. With his humour and ability to try something new and always wantin...

18 Elo 20241h 32min

Season 1 - Episode 3: Graeme Hutton

Season 1 - Episode 3: Graeme Hutton

https://www.vam.ac.uk/dundee/whatson/events/multiple-exposures Graeme is an award winning architect and Professor at Dundee school of art. He has exhibited at Dundee V & A and is about to publish his ...

18 Elo 20241h 17min

Season 1 - Episode 2: Damian Washington

Season 1 - Episode 2: Damian Washington

I first 'met' Damian through his Youtube channel as he shared his own MS journey. He's engaging, funny and perhaps most importantly he is authentic His Youtube channel http://www.youtube.com/@NoStress...

18 Elo 20241h 6min

Season 1 - Episode 1: Heather Mcqueen

Season 1 - Episode 1: Heather Mcqueen

I first met Heather last year. At least that's the first I remember. My sister Mona and Heather are old school friends. Heather very kindly agreed to support me in getting this series of podcasts star...

18 Elo 20241h 41min

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