The Reverse Rett Podcast30 Huhti 2021

Ep 17 Jocelyn LeBlanc

Today's podcast conversation is with Dr Jocelyn LeBlanc. Jocelyn earned her PhD in neuroscience from Harvard Medical School where she worked in the laboratory of Dr. Michela Fagiolini. Jocelyn then made the unusual shift from working with Rett mice to working with children with Rett Syndrome at Boston Children's Hospital.

Now resident in the UK with her own family, Jocelyn works for the umbrella medical research organisation, the Association of Medical Research Charities where she oversees the collection, analysis and publication of sector data to demonstrate the scale of charity investment in medical research and highlight the impact of this research on people and society.

In this conversation, Jocelyn shares the impact of her first meeting with a young patient with Rett Syndrome and provides some insight into what she learned from studies conducted with these children and families. We also discuss the work of AMRC and why membership is so important to small medical research charities like Reverse Rett, particularly now during the on-going pandemic.

I am grateful to Jocelyn for taking the time to speak to me and especially for indulging my unscientific contemplation of what goes on inside the minds of people with Rett Syndrome. As always, we'd love to know what you think of the podcast. Please don't forget to like and subscribe.

https://www.reverserett.org.uk

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Jaksot(27)

Ep 27 Mark "Mavis" Reilly

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Ep 26 Ross McKinney and Duncan Hughes

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Ep 25 Gareth Warne - Pink Elephant Challenge 3

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Ep 24 - Mathilde Mastroianni

The Reverse Rett podcast is back and in this episode, I'm speaking with Mathilde Mastroianni, Assistant Psychologist at the CIPP Rett Centre, South London and Maudsley NHS Foundation Trust and King's ...

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Ep 23 Victoria Scott

If you were offered a chance to cure your child's disease, would you take it? Not a question we have to think very hard about at Reverse Rett, but this is the fundamental question that underpins Victo...

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Ep 22 Cameron Ross

In this episode of the podcast, I sit down with Cam Ross, older brother to Frankie, and son of Reverse Rett co-founder and Trustee, Rita Ross. We'd never had a conversation before recording this episo...

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Ep 21 Helen Simmonds

In today's podcast episode, I'm speaking to Helen Simmonds, Vice Chair of Reverse Rett and mother to Lauren who is 14 and her younger brother William. I met Helen all the way back in 2011 when Lauren ...

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Ep 20 David Wainwright

This week our guest is one of the busiest dads on the planet, my friend, David Wainwright. David lives in Loughborough with wife, Louise and their three children. His eldest, Georgia has Rett Syndrome...

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