Ep 19 Vincent Johnsson

Ep 19 Vincent Johnsson

This week's podcast guest is Vincent Johnsson, Dad of Hannah and three boys, he's also on about day 470 something of a 500 day (yes, 500 days...) 5K a day challenge which started even before the pandemic (can anyone even remember those days?) and has gone on all throughout!

At first glance, Vincent is not at all the usual pain-hungry, self-punishing type male we typically witness undergoing these trials of physical and spiritual endurance under the guise of fundraising at Reverse Rett, but he is no less passionate, determined, angry, committed, hopeful and stoical about this never-ending daily get up and do it all again grind which is living with Rett Syndrome, oh and the 500 day running thing as well.

Throughout this episode, I laughed and cried and walked away, more determined than ever, to keep on going until the next lamppost. Have a listen and let us know what you think rachael@reverserett.org.uk or @reverserett on any of the socials

If you want to support Vincent find out how here: https://www.justgiving.com/fundraising/vincents5adaychallenge

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(27)

Ep 27 Mark "Mavis" Reilly

Ep 27 Mark "Mavis" Reilly

In this episode Mark "Mavis" Reilly. Mark is a former professional footballer; he shares his story and experiences taking on some of the most gruelling physical challenges to raise awareness for Rett ...

13 Heinä 202349min

Ep 26 Ross McKinney and Duncan Hughes

Ep 26 Ross McKinney and Duncan Hughes

The whole Rett Syndrome community were enthralled as the Five in a Row team set off from the Canary Islands last December in the Talisker Whisky Challenge.   Rowing the Atlantic is on the bucket list ...

25 Heinä 202240min

Ep 25 Gareth Warne - Pink Elephant Challenge 3

Ep 25 Gareth Warne - Pink Elephant Challenge 3

It's been a while but the Reverse Rett podcast is back! It was a pleasure to speak to the Pink Elephant man himself earlier this week as he approaches his latest crazy challenge for Reverse Rett. Spon...

22 Kesä 202232min

Ep 24 - Mathilde Mastroianni

Ep 24 - Mathilde Mastroianni

The Reverse Rett podcast is back and in this episode, I'm speaking with Mathilde Mastroianni, Assistant Psychologist at the CIPP Rett Centre, South London and Maudsley NHS Foundation Trust and King's ...

1 Loka 202149min

Ep 23 Victoria Scott

Ep 23 Victoria Scott

If you were offered a chance to cure your child's disease, would you take it? Not a question we have to think very hard about at Reverse Rett, but this is the fundamental question that underpins Victo...

5 Elo 202151min

Ep 22 Cameron Ross

Ep 22 Cameron Ross

In this episode of the podcast, I sit down with Cam Ross, older brother to Frankie, and son of Reverse Rett co-founder and Trustee, Rita Ross. We'd never had a conversation before recording this episo...

24 Heinä 202140min

Ep 21 Helen Simmonds

Ep 21 Helen Simmonds

In today's podcast episode, I'm speaking to Helen Simmonds, Vice Chair of Reverse Rett and mother to Lauren who is 14 and her younger brother William. I met Helen all the way back in 2011 when Lauren ...

16 Heinä 202152min

Ep 20 David Wainwright

Ep 20 David Wainwright

This week our guest is one of the busiest dads on the planet, my friend, David Wainwright. David lives in Loughborough with wife, Louise and their three children. His eldest, Georgia has Rett Syndrome...

2 Heinä 202148min

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