The Case for Disclosing Biomarker Results to Alzheimer’s Research Participants
Dementia Matters15 Marras 2022

The Case for Disclosing Biomarker Results to Alzheimer’s Research Participants

Though several validated biomarkers are studied and used in Alzheimer’s disease research, most research participants don’t have the opportunity to learn their biomarker results afterward, even if they have cognitive impairment. Drs. Jason Karlawish and Josh Grill join the podcast to discuss the debate over sharing biomarker results with research participants, how these powerful disclosures can be made ethically, and why it's as important for the field to study biomarker disclosures as it is to study the biomarkers themselves.

Guests: Josh Grill, PhD, director, Institute for Memory Impairments and Neurological Disorders, associate professor, University of California, Irvine, and Jason Karlawish, MD, co-director, Penn Memory Center, professor of medicine, medical ethics and health policy, and neurology, University of Pennsylvania

Show Notes

Read Dr. Jason Karlawish and Dr. Josh Grill’s viewpoint piece, “Disclosing Alzheimer Disease Biomarker Results to Research Participants,” from JAMA Neurology’s June 2022 issue.

Listen to our episode with Dr. Daniel Gibbs about his book (mentioned by Dr. Karlawish at 34:21) on our website, Spotify, Apple Podcasts, or wherever you listen.

Listen to our past episode on amyloid disclosures with research participants on our website, Spotify, Apple Podcasts, or wherever you listen.

Learn more about Dr. Josh Grill at his bio on the University of California - Irvine website.

Learn more about Dr. Jason Karlawish’s work at his website.

Connect with us

Find transcripts and more at our website.

Email Dementia Matters: dementiamatters@medicine.wisc.edu

Follow us on Facebook and Twitter.

Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(247)

Looking at More than Memory: Functional Assessments and Blood Tests for Alzheimer's Disease in Primary Care

Looking at More than Memory: Functional Assessments and Blood Tests for Alzheimer's Disease in Primary Care

Though new blood-based biomarker tests have made it less expensive, less invasive and more accessible to diagnose Alzheimer’s disease, they can’t replace the diagnostic process as a whole. Dr. Eric Wi...

6 Loka 48min

Examining Environmental Factors' Effects on Cognition

Examining Environmental Factors' Effects on Cognition

New research is looking at the effects of environmental factors on the brain as we age. Dr. Kathryn Conlon joins the podcast to discuss how factors like air pollution and lead exposure can affect cogn...

22 Syys 42min

Blood Tests and Brain Scans and Biomarkers, Oh My! How Biomarkers are Changing Alzheimer’s Disease Clinical Trials

Blood Tests and Brain Scans and Biomarkers, Oh My! How Biomarkers are Changing Alzheimer’s Disease Clinical Trials

In recent years, the U.S. Food and Drug Administration (FDA) has approved new biomarker tools for Alzheimer’s disease, including blood tests and tracers for brain scans. How are these tools used in re...

8 Syys 45min

New Alzheimer’s Association Special Report Breaks Down How Americans Understand and Support their Brain Health

New Alzheimer’s Association Special Report Breaks Down How Americans Understand and Support their Brain Health

In recent years, public interest in brain health has increased. So how are Americans understanding brain health information and incorporating it into their own lives? This year, the Alzheimer’s Associ...

25 Elo 37min

Reflecting on 25 Years of the Wisconsin Registry for Alzheimer’s Prevention

Reflecting on 25 Years of the Wisconsin Registry for Alzheimer’s Prevention

Twenty-five years ago, a single participant enrolled in what would become the Wisconsin Registry for Alzheimer's Prevention (WRAP), now one of the largest and longest-running studies of Alzheimer's ri...

12 Elo 35min

How Dementia Caregiving Affects the Spousal Caregiver

How Dementia Caregiving Affects the Spousal Caregiver

Caring for those with dementia represents a major public health challenge, with caregivers, especially spouses, providing long-term, largely unpaid care. With caregiving stress linked to a decline in ...

28 Heinä 39min

Managing the Medicine Cabinet: How Prescriptions Impact Cognition and Brain Health as We Age

Managing the Medicine Cabinet: How Prescriptions Impact Cognition and Brain Health as We Age

Prescription medications, over-the-counter drugs and supplements are incredibly common among older adults, yet many of these routine treatments can unexpectedly impact cognitive function and brain hea...

14 Heinä 35min

Taking a Deep Dive into Subjective Cognitive Decline

Taking a Deep Dive into Subjective Cognitive Decline

Dr. Jessen returns to the podcast to take a deeper dive into subjective cognitive decline (SCD). Aiming to cover everything relating to SCD, Dr. Jessen shares insights in prognosis, risk factors and h...

7 Heinä 17min

Suosittua kategoriassa Tiede

tiedekulma-podcast
rss-mita-tulisi-tietaa
utelias-mieli
rss-duodecim-lehti
rss-hereilla
docemilia
rss-kasvikutsut
rss-radplus
rss-normaalivinouma
rss-vaasan-yliopiston-podcastit
rss-poliisin-mieli