#119: Chaz Hayden Discusses His Debut Novel

#119: Chaz Hayden Discusses His Debut Novel

In episode 119, host Kevin Schaefer talks with Chaz Hayden, a young adult author with SMA. Chaz’s debut novel, The First Thing About You, tells the story of a 15-year-old boy with SMA named Harris who wants to reinvent himself. Kevin and Chaz discuss themes in the book, the personal experiences that influenced the story, and Chaz’s advice for other writers. ================================ Chaz’s website: https://www.chazhayden.com/ The First Thing About You: https://www.chazhayden.com/the-first-thing-about-you ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

Jaksot(444)

#118: Aging and SMA

#118: Aging and SMA

In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Rock’s experimental therapy, Apitegromab, and go ove...

22 Marras 202252min

#116: Shaniqua Granby, Law Professional With SMA

#116: Shaniqua Granby, Law Professional With SMA

In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, and she has SMA Type 3. She discusses going to law...

18 Loka 202237min

#115: Jose Flores, Author and Motivational Speaker

#115: Jose Flores, Author and Motivational Speaker

In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with SMA Type 3. He discusses his journey toward entrepr...

4 Loka 202250min

#114: Daniele Johnson, SMA Mom and Advocate

#114: Daniele Johnson, SMA Mom and Advocate

In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband’s youngest son, Anthony, has SMA type 0. She talks about her son’s diagnosis, pursuing ...

20 Syys 202230min

#113: Dustin Swafford, Power Soccer Coach and Player

#113: Dustin Swafford, Power Soccer Coach and Player

In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and his team recently won the national championship. He...

6 Syys 202235min

#112: Lexi Villa, Social Media Influencer and Disability Advocate

#112: Lexi Villa, Social Media Influencer and Disability Advocate

In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media. She discusses moving away from home at a young a...

16 Elo 202256min

#111: Steven Verdile, Graphic Designer and Disabled Creative

#111: Steven Verdile, Graphic Designer and Disabled Creative

In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media creator from New York City. Steven is also the founder and editor-in-chief of The Squeaky Wheel, an online d...

2 Elo 202228min

#110: Author Ben Mattlin Discusses Disability Pride Month

#110: Author Ben Mattlin Discusses Disability Pride Month

In episode 110, host Kevin Schaefer welcomes back to the podcast Ben Mattlin, an author and disability rights advocate. His upcoming book is called “Disability Pride: Dispatches from a Post-ADA World,...

19 Heinä 202231min

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