Living With Cystic Fibrosis5 Touko 2025

Live Fearlessly: Jacob Venditti

Eight miles. Two friends. One cause.

This episode now holds even deeper meaning. Jacob Venditti, who has since passed away from complications of cystic fibrosis (August 16th 2025), shares his story with a raw honesty that feels like a gift. He opens up about life with CF, the daily challenges he faced as he prepared for a lung transplant, and the vital role of community in carrying him forward. He speaks about the Live Fearlessly Foundation and the rare disease income threshold amendment he championed, work that reflected his relentless drive to create equity and hope for others.

Jacob also lights up when talking about his passion for the Crossing 4 CF, the ocean, and the healing power it brought him. Joined by his close friend Rob Brown, the conversation shifts to their 80-mile paddle race, a shared mission to raise awareness for cystic fibrosis. Their bond—rooted in surfing, resilience, and love for life, shines through in every word.

Listening back now, Jacob’s courage, humor, and hope feel even more profound. This conversation is a reminder of the extraordinary way he lived, loved, and inspired. Jacob paddled fearlessly, and his spirit continues to ripple across the CF community and beyond.

To connect with Jacob and his team: https://livefearlesslyfoundation.com

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