Provider Profiles: Dr. Leonard Weinstock and his most important patient, Max
Dr. Leonard Weinstock -- gastroenterologist, prolific researcher, and clinician on a mission to cure syndromes -- returns with his grandchild, Max, to discuss MCAS, his latest research projects, the release of his Triad documentary, and why he is so driven to keep helping people with mysterious complex syndromes. If you are a fan of Dr. Weinstock as we are, you'll enjoy hearing him in the role of both dedicated physician and dedicated grandfather. If you'd like to consider supporting the Triad documentary, please visit MCASfund.org. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.orgFacebook: https://www.facebook.com/standinguptopots/Instagram: https://www.instagram.com/standinguptopots/Twitter: https://twitter.com/POTSActivistPintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
5 Helmi 24min
Lisa on living independently with POTS, blindness, and an intuitive Pomeranian
Since birth Lisa has lived without eyesight or normal hormones, but it wasn't until her 50's that POTS and long COVID struck. But that hasn't stopped her from travelling, singing in a choir (including solos) and living independently. Lisa is an expert on developing smart strategies to live better with physical challenges: In addition to doing it for her own unique combo of conditions, her profession is teaching classes to people without eyesight on living independently. Lisa shares her practical tips and her 'layer cake' approach to finding solutions, hacks and life improvements. Lisa also discusses her work, travels, recreation, and taking cues when her pomeranian body slams her in the middle of the night. You can hear Lisa singing in her choir here - she is the second soloist. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
26 Tammi 44min
Dr. Derik Anderson, DC, DSN, DCP on interconnections between hypermobility, POTS, MCAS, autoimmunity, dysbiosis
Dr. Derik Anderson discusses the interconnections between POTS, hypermobility, MCAS, gut dysbiosis, autoimmunity, plus shares some of the approaches used by his clinic to identify and treat the 20% of issues causing 80% of the problems. He discusses shockwave therapy, fascia compression, heart rate variability and more. The Muscle and Joint Clinic website can be found here. The slide show (with mentioned diagram) explaining connections between syndromes is available here: https://www.ehlers-danlos.com/wp-content/uploads/2023/07/Derik_Anderson_Deconditioning_How_to_Recondition.pdf.The mentioned diagram is slide #3 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
21 Tammi 41min
"Primary care without the Gaslighting" with Danielle Lazarowitz, Dr. Jen Rubin & Dr. Kate Eisenberg
Danielle experienced first-hand the shortcomings of the conventional primary care model for patients with complex chronic illness like dysautonomia. So, what did she do? She founded a better one: "Primary care without the gaslighting"! Danielle and two of the physicians on her team, Dr. Jen Rubin and Dr. Kate Eisenberg, discuss their new model and clinic, how they provide care differently, why it makes a difference to have a PCP who understands POTS and related conditions, and their plans for the future. You can learn more about their clinics HERE. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
14 Tammi 43min
Designing the Uplift compression device with Kishen Mitra and Sameer Kunte
Many POTS patients wear abdominal compression, but a team from Duke is researching ways to make it more comfortable and effective. Kishen Mitra and Sameer Kunte are leading the team and describe their work so far, researching patient preferences, technology, designs and plans to help POTS patients have better choices for abdominal compression devices. The Uplift survey findings are published here. Here is Uplift on LinkedIn Here is the Uplift website If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
8 Tammi 42min
E238:Kristy’s Wild Ride
Kristy's POTS had her largely bedbound until her stubborn streak and competitive spirit led her to train for a 450 mile cycling race. She recounts the training, the 35-hour-long event, the aftermath, and what she's up to now. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
31 Joulu 202433min
E237:Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber
The Dysautonomia Project is a Florida-based non-profit best known for their wonderful book on Dysautonomia for both patients and providers. But they also have other great resources including their DysCourse program for patients and caregivers, education courses for healthcare practitioners, list of recommended practitioners by geographic region, and more. Professor June Bryant, DNP, APRN, CPNP-PC and Educational Director Cheryl Faber explain their history, mission, upcoming events and how to get involved and/or take advantage of the offerings made possible by The Dysautonomia Project. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
22 Joulu 202443min
E236:Angela on MALS surgery, vascular compressions and more
Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived: POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS. Angela discusses how she worked to find the right experts, get answers, how her surgery for MALS went, which symptoms it did and didn't help, and which treatments she is considering now. She also discusses how she copes and stays so productive while juggling these conditions. You can follow Angela at... Instagram: @positivitypotsedsmcas TikTok: @positivitypotsedsmcas Facebook: https://www.facebook.com/positivitypotsedsmcas/ If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
17 Joulu 202446min
