Living With Cystic Fibrosis26 Touko 2025

Voices of Care: A Live and Unfiltered Conversation

Live from Mix and Mingle Education Day: A Powerful Conversation with Caregivers

In this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of caregivers—grandparents, parents, stepparents, dads, and friends—for a heartfelt discussion about the emotional journey of caring for a loved one with cystic fibrosis.

What started as a simple idea to gather voices turned into our most beautiful and emotional podcast yet. There were tears, laughter, and unforgettable stories. We were honored to be joined by a Grief Counselor who helped guide us through the complex feelings that surfaced during our conversation.

This episode is a raw, real, and uplifting tribute to the strength, vulnerability, and love that caregivers bring to their roles every single day.

Join us for a conversation that honors the heart of caregiving and the power of community.

You’ll hear from:

(00:00:00) Laura Bonnell - Host - (Egypt, Foundation programs, legislation)

(00:16:49) Lois Teicher - CF Grandmother (Laura’s Mom)

(00:19:05) Natalie Wicks Lois’s partner

(00:21:36) Julie Weatherhead - Grief Doula

(00:28:45) Sharon Tischio - CF Mom

(00:33:08) Cambria Whitaker - CF Mom in a queer/transgender relationship

(00:38:55) Theresa Dagget, MSU Clinic, Respiratory Therapist, CF coordinator

(00:49:00 ) Dorothy Stratford,CF Family Caregiver

(00:52:15) Jillian Rogers Smith, 33 year old CF Patient and Dad, Bill Rogers

(01:01:40) CF Mom to 6 year old daughter Louisa

(01:07:28) Wendi Tague (Nurse Coordinator) and Claire Haglund (Social Worker)

Present but not on the microphone were Joe Bonnell (Laura’s husband), Jeannette Bovensie (Dorothy's Mom) and Dani Nettleton and daughter.

Claire Haglund: CHaglund@dmc.org

Wendi Tague: wtague@dmc.org

Lois Teicher (Laura's Mom): Loisteicher@yahoo.com

Natalie Wicks: Piccolo35@gmail.com

Theresa Daggett: daggett3@msu.edu

Cambria Whittaker: cambriawhitta@gmail.com

Dorothy Straford: dstrat701@gmail.com

Sharon Tischio: stischio@comcast.net

Jamie Rudnycky: jamie.rudnycky@gmail.com

Julie Weatherhead: weathervanecounseling@gmail.com

Jillian Smith, Jillian's Jay Walkers: jill@jilliansjaywalkers.org

And Jillian's Dad, Bill Rogers

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(206)

CF Scholars: Stories of Determination

Dreams and Determination: Meet four Inspiring students, Living with cystic fibrosis. One of the greatest joys of The Bonnell Foundation is helping young adults living with cystic fibrosis pursue their...

13 Heinä 53min

Turning family loss into hope: Kate O'Donnell's story

I thoroughly enjoy doing my podcasts. It’s the one thing I truly miss from my television news reporting days — interviewing extraordinary people every single day. Through The Bonnell Foundation, I now...

6 Heinä 44min

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting...

29 Kesä 48min

Running changed and saved her life - Katie O'Grady inspires

"Many people have their own thing that lights them on fire, for me, it's running" say Katie O'Grady. CF modulator drugs changes are a game changer for people living with cystic fibrosis. Katie O’Grad...

22 Kesä 38min

Final Breath, First New Life: Jillian’s Transplant Journey

“Take in your final breath before your first new one.” Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of anot...

15 Kesä 26min

Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but mo...

8 Kesä 58min

Failure, Grit, and Breakthroughs with Dr. Tom Kaiser

“Behind every breakthrough are countless failures no one ever sees—but that’s exactly what makes progress possible.” Dr. Thomas Kaiser. When I have scientists on the podcast: they’re some of the coole...

1 Kesä 42min

Christopher Cornejo, late diagnosis with CF

Living Fully with CF: Christopher Cornejo’s Journey from Diagnosis to Avatar This fast-moving and deeply engaging conversation features Christopher Cornejo, who brings a fresh and powerful voice to ...

25 Touko 36min