Episode 410: From the International Progressive MS Alliance Digital Tools Workshop -- Part Two
RealTalk MS7 Heinä 2025

Episode 410: From the International Progressive MS Alliance Digital Tools Workshop -- Part Two

Over the past few months, we've shared news about an algorithm that can accurately predict whether someone living with MS will experience worsening symptoms or a relapse in the weeks ahead.

You've heard about a three-quarter-of-a-million-dollar investment by the International Progressive MS Alliance to support the development of an AI-based tool that will predict future disability as well as how someone with MS will respond to different disease-modifying therapies.

Just last week, you learned about a digital tool that can accurately diagnose whether someone has relapsing-remitting MS or progressive MS -- after a five-minute test!

Digital tools are poised to rewrite the rules when it comes to conducting MS research and providing patient care. Welcome to Part Two of our coverage of the Digital Tools Workshop hosted by the International Progressive MS Alliance.

In this week's episode, you'll hear Vanessa Fanning share her perspective as someone living with progressive MS on how digital tools can benefit people with progressive MS, while also highlighting some of the challenges that need to be addressed.

Then, you'll hear neuroimmunologist and data scientist Professor Sergio Baranzini discuss how all the data that digital tools produce will be integrated into MS research and MS care.

Dr. Ruth Ann Marrie recaps the topics covered at the meeting and describes the next steps necessary to integrate digital tools into MS clinical care.

And we'll have to take a moment to share the frightening real-world consequences of last week's decision by President Trump and Congress to cut a trillion dollars from Medicaid.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The real-world impact of the Big, Beautiful Bill on people with MS and any other chronic illness :22

An example of how a digital tool could revolutionize MS patient care 7:41

Vanessa Fanning shares a patient's perspective on how digital tools can benefit people living with progressive MS and reminds us of the challenges that still need to be solved 11:19

Professor Sergio Baranzini discusses managing big data in the clinic 23:15

Dr. Ruth Ann Marrie provides a recap of the workshop and describes the next steps to be taken 31:07

Share this episode 43:21

Have you downloaded the free RealTalk MS app? 43:41

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/410

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Become an MS Activist
https://nationalmssociety.org/advocacy

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 410
Guests: Vanessa Fanning, Professor Sergio Baranzini, Dr. Ruth Ann Marrie

Privacy Policy

Jaksot(504)

Episode 391: Choosing the Right Mobility Device with Dr. Evan Cohen

Episode 391: Choosing the Right Mobility Device with Dr. Evan Cohen

MS can limit your ability to get around and do the things you like to do. And when that happens, the right mobility device can be a game-changer when it comes to staying safe, staying active, and impr...

24 Helmi 202532min

Special Episode: A Consensus Paper on Smoldering MS with Dr. Antonio Scalfari

Special Episode: A Consensus Paper on Smoldering MS with Dr. Antonio Scalfari

This special episode of RealTalk MS is sponsored by Sanofi. By now, you may have come across the term smoldering MS and wondered what it means. An international panel of MS experts has published a co...

20 Helmi 202521min

Episode 390: Managing MS Pain with Dr. Bianca Weinstock-Guttman

Episode 390: Managing MS Pain with Dr. Bianca Weinstock-Guttman

More than half of the people living with MS live with pain. And, too often, the distraction and discomfort of MS-related pain can stop you from fully engaging in every aspect of your life. Dr. Bianca...

17 Helmi 202530min

Episode 389: Overcoming the Stigma of MS with Denise Schnieders and Fox Rigney

Episode 389: Overcoming the Stigma of MS with Denise Schnieders and Fox Rigney

Living your best life with MS means learning to overcome the stigma of having a disability, successfully navigating social relationships, and learning how to ask for and accept help. Joining me to sh...

10 Helmi 202534min

Episode 388: Understanding Gut Health and MS with Dr. Ashutosh Mangalam

Episode 388: Understanding Gut Health and MS with Dr. Ashutosh Mangalam

When we talk about myelin damage, most of us typically think of the brain. After all, that myelin is located in your central nervous system. But the inflammation that causes myelin damage may be trigg...

3 Helmi 202537min

Episode 387: Inside the TEAAMS Study with Ashli and Victoria

Episode 387: Inside the TEAAMS Study with Ashli and Victoria

The TEAAMS study examines the effects of a remotely delivered, racially-tailored exercise training program among African-Americans with MS, who are living in low-income areas of the Southeastern Unite...

27 Tammi 202534min

Episode 386: When to Seek Immediate Medical Care for MS with Dr. Kalina Sanders

Episode 386: When to Seek Immediate Medical Care for MS with Dr. Kalina Sanders

MS symptoms can worsen, and relapses can occur. And when that happens, how do you know whether you require immediate medical care? When is it time to go to the hospital? Dr. Kalina Sanders joins me to...

20 Tammi 202533min

Bonus Episode: Understanding Healthcare Provider Burnout -- How Patients and HCPs Can Work Together to Support Each Other

Bonus Episode: Understanding Healthcare Provider Burnout -- How Patients and HCPs Can Work Together to Support Each Other

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States ...

16 Tammi 202511min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
vakeva-elama-viisaampi-mieli-vahvempi-keho
tiedenaiset-podcast
psykopodiaa-podcast
rss-pitaisko-erota
puhu-muru
katilon-kahvitunti
terapiassa
rss-uplevel-by-sonja-hannus
rss-rakas-mielenterveyteni
rss-narsisti
selviytyjat-tarinoita-elamasta
junnut-pelissa
rss-duodecim-lehti
meditaatiot-suomeksi
audio-sport-juoksu
rss-pt-paahtio
rss-addiktit
rss-vapaudu-voimaasi