Episode 35 - With Nicole and Benjamin Perry

Episode 35 - With Nicole and Benjamin Perry

In the first Mother/Son podcast episode, I am joined by Nicole and Benjamin Perry, Nicole talks about the ups and downs of hospital life as well as the 22 months wait for Benjamin's HD diagnosis.

Benjamin and I discuss the differences between life as an HD child, 20 years apart, and how his experiences differ from mine, he will also talk about his own advocacy journey and how he's determined to help other in his position.

Nicole is also part of the REACH HD board, and has been since 2018, we will chat about her role as the main fundraiser, as well as how helpful the board were to her through her sons initial diagnosis and treatment.


Please enjoy the episode


Follow Nicole - @nicole.perry.18

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Jaksot(142)

Episode 136 - With Megan Wallis

Episode 136 - With Megan Wallis

After her local hospital had no idea what was wrong, Megan became increasingly concerned about her son Oaklee when he was diagnosed with Hirschsprung's Disease.We also chat about Megan and her familie...

13 Elo 47min

Episode 135 - With Jodie

Episode 135 - With Jodie

Jodie talks about her 8 month old daughter Libby and her variety of medical conditions, including Hirschsprung's Disease and Mowat-Wilson Syndrome.We talk about the need for advocacy and how Jodie and...

6 Elo 39min

Episode 134 - With Megha (Part 2)

Episode 134 - With Megha (Part 2)

Megha comes back on the show to give us an update on life after 18 months. Although not without its challenges, this is a wonderfully positive episode focusing on how Anya is progressing with her Hirs...

30 Heinä 45min

Episode 133 - With Nicole Voss

Episode 133 - With Nicole Voss

Mum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is and the multiple red flags missed by the...

23 Heinä 1h 8min

Episode 132 - With Natalie Little

Episode 132 - With Natalie Little

Natalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and surgeries. Within this episode Natalie gives ...

16 Heinä 49min

Episode 131 - With Katie Thomson

Episode 131 - With Katie Thomson

In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk.After her so...

9 Heinä 39min

Episode 130 - With Andrea Guse

Episode 130 - With Andrea Guse

A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the complexities of having a child with a wea...

2 Heinä 1h

Episode 129 - With Jodie Mulrainey

Episode 129 - With Jodie Mulrainey

Jodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the last 10 years, including multiple bouts o...

25 Kesä 1h 1min

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