S2 E2 Mickey interviews Susan McCauley, who is recovering from ulcerative proctitis

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Welcome to The Autoimmune Wellness Podcast Season 2! We’ve created this podcast as a free resource to accompany our book, The Autoimmune Wellness Handbook: A DIY Guide to Living Well with Chronic Illness.

Season 2 Episode 2 is the first of our interview episodes this season! This week, Mickey sits down with her friend Susan McCauley to discuss Susan’s experience managing an unidentified autoimmune condition for many years. Susan was eventually diagnosed with ulcerative proctitis, but her healing approach has been all about addressing the root causes from the beginning.

Susan and Mickey dig into what it was like for Susan to finally receive a diagnosis, they myriad treatments and tests she underwent, low-dose naltrexone, stress management, and the importance of a support system. Scroll down for the full episode transcript.

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Full Transcript:

Mickey Trescott: Welcome to the Autoimmune Wellness podcast, a complimentary resource for those on the road to recovery. I’m Mickey Trescott, a nutritional therapy practitioner living well with autoimmune disease in Oregon. I’ve got both Hashimoto’s and Celiac disease.

Angie Alt: And I’m Angie Alt, a certified health coach and nutritional therapy consultant, also living well with autoimmune disease in Maryland. I have endometriosis, lichen sclerosis, and Celiac disease. After recovering our health by combining the best of conventional medicine with effective and natural dietary and lifestyle interventions, Mickey and I started blogging at www.Autimmune-Paleo.com, where our collective mission is seeking wellness and building community.

Mickey Trescott: This podcast is sponsored by The Autoimmune Wellness Handbook; our co-authored guide to living well with chronic illness. We saw the need for a comprehensive resource that goes beyond nutrition to connect savvy patients, just like you, to the resources they need to achieve vibrant health. Through the use of self assessments, checklists, handy guides and templates, you get to experience the joy of discovery; finding out which areas to prioritize on your healing journey. Pick up a copy wherever books are sold.

Angie Alt: A quick disclaimer: The content in this podcast is intended as general information only, and is not to be substituted for medical advice, diagnosis, or treatment. Onto the podcast!

Topics:
1. Introducing our guest, Susan, and her autoimmune wellness story [3:19]
2. Officially a diagnosis [8:14]
3. Varying treatments and testing [18:07]
4. Low-dose naltrexone [24:24]
5. Stress management and sleep [28:31]
6. Having a support system [35:48]
7. Tips for the beginning of your autoimmune journey [40:21]

Mickey Trescott: Hey everyone! Welcome back to the Autoimmune Wellness podcast. We are in season 2 of the podcast. This is Mickey if you guys haven’t figured out the differences between Angie and mine voice yet. Today I am doing a personal interview with my friend Susan; hey Susan.

Susan: Hey Mickey! How’s it going?

Mickey Trescott: Awesome. Susan is one of my AIP and paleo BFFs. We met at PaleoFx; gosh, 3 years ago?

Susan: It was actually AHS.

Mickey Trescott: Oh! AHS, yep. So there we go.

Susan: And it was longer than that.

Mickey Trescott: Four!

Susan: I think it was 4 years ago.

Mickey Trescott: Yeah.

Susan: Yeah, 4 years ago.

Mickey Trescott: I was looking for a ride home from the airport, and Susan had a rental car, and she was also picking up Ben Greenfield, so I got to meet him. So Susan was one of my first paleo friends.

Susan: And Mickey was one of mine. And we had the same shoes on, and it was like; BFFs at first site.

Mickey Trescott: Yep! {laughs}

Susan: {laughs}

Mickey Trescott: Basically. We couldn’t not be friends.

Susan: Yes, exactly. It was meant to be.

Mickey Trescott: So I’m really excited to share a little bit of Susan’s story today because Susan is one of these people who hasn’t had a clear autoimmune diagnosis from the outset, but she has done a really great job at kind of tirelessly working out some of these root causes and kind of still working on some of that; we’ll talk about that. And I think she just has such a great attitude about the healing journey. She’s also a coach, so she has a lot of experience about this stuff. But Susan, thank you so much for being here; joining us from California. You ready to get started?

Susan: Sure; shoot. Go ahead.

1. Introducing our guest, Susan, and her autoimmune wellness story [3:19]

Mickey Trescott: Alright. So, I know that this question is a little bit more complicated for you; but tell me a little bit about your autoimmune disease, and what you first noticed when you first realized maybe that’s something you were struggling with.

Susan: Well, I first had symptoms a long time ago. I kind of am the example of what not to do, or how to go about everything backwards. I didn’t come to paleo because I was sick; I came to paleo because I wanted to lose weight, and because I had kind of developed a binge eating disorder from all the yo-yo dieting, so I was trying to change my relationship with food. But my first autoimmune symptoms; I have ulcerative proctitis, which is like the cousin of ulcerative colitis. It’s just less severe, and in the lower part; the distal part of the colon. I had symptoms as early as probably 10 years ago; which I don’t know how much TMI about symptoms is on your podcast {laughs}.

Mickey Trescott: Anything goes. We talk about poop all the time.

Susan: So basically, bleeding; rectal bleeding, bleeding when you have your bowel movements, and it started when I was doing the yo-yo dieting and the Weight Watchers; and paid attention to conventional wisdom on things like fiber. And I remember one time I ate four Fiber One bars; and I don’t know if you’ve ever had one of those, but they have like; I don’t know how much fiber in them, but they’re like a cookie, you know? And I had a binge eating problem. So one is delicious; four even more delicious. And that’s when the gut problems started.

I went to Kaiser, and they did a sigmoidoscopy; I think that’s what you call it, it’s been so long. And then they gave me some medication and told me not to eat too many vegetables; that was it. You know; it was basically, “take some medication; you have to take it, and you might have ulcerative colitis, right now we’re just going to call it undetermined.”

Mickey Trescott: And you got this