I AM MADELINE

I AM MADELINE

A performer (actress, singer), leader, mentor, & community volunteer with her hands on a number of projects, Madeline(now fully public as Marcia)is a joy to know. She loves gardening & The Sound of Music. Her friends describe her as "effervescent." She's one of more than 600,000 Canadians living with family of diseases twice as common as Multiple Sclerosis, little doctor education, strong correlation to viral infections, esp COVID-19. She & others face painful deadly deterioration without more government supports. Petition https://bit.ly/Marcia_petition GoFundMe https://gofund.me/6d981312

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Jaksot(158)

tired brain is tired

tired brain is tired

where I document what happened this week. And what it's like to just try to deal with what a euphemistically called brain fog. It's a brutality of tired brain that it's hard to convey.

31 Touko 22min

A kind of claustrophobia, disability flavor

A kind of claustrophobia, disability flavor

This is my 4th attempt to try to explain the measure of extra crunchy hard I've been experiencing right now. The best way I know to describe the extremity of overwhelm and difficulty coming at me from...

22 Touko 23min

housekeeping, deep clean part one

housekeeping, deep clean part one

Because of the amazing efforts of my friend and the GoFundMe she set up to have my apartment deep cleaned We started today! So I thought I would document that for the donators to that particular gfm. ...

12 Touko 31min

the grind

the grind

in which I grind away trying to get things done and the system grinds on me slowly destroying me In spite of my best efforts to wrangle them to logic.I'm sorry I don't have the brain power to include ...

9 Touko 21min

working outside a tiny ME energy envelope is like borrowing money from the mob, you will pay dearly!

working outside a tiny ME energy envelope is like borrowing money from the mob, you will pay dearly!

Update where you get a case in point of why it is bad bad baddy bad bad to work outside your energy envelope and when you have a long viral ME Things I mention Gfmhttps://gofund.me/6d981312Petitionhtt...

4 Touko 29min

some little pieces of good news amidst the difficulty

some little pieces of good news amidst the difficulty

mini episode where I give you a few little snippets of some good things among all of the ongoing Herculean rough and tough thingsphoto is of 12 little bouquets waiting to be given out for plant distri...

23 Huhti 9min

My life, the dramedy

My life, the dramedy

documenting yet another instance of when I go out of my way to double check on the some sort of medical provider and get told incorrect information which ultimately causes me to hemorrhage energy

21 Huhti 13min

Walk softly and carry a big stick

Walk softly and carry a big stick

where I'm thinking I'm going to have to do different strategy in really start getting a public officials to understand that if they are thinking that stonewalling me and waiting for me to die will mak...

17 Huhti 18min

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