Lewy Body and Mindful Caregiving

Lewy Body and Mindful Caregiving

Lewy Body and Mindful Caregiving is a weekly podcast hosted by yours truly, Krystal Jakosky. I’ve always been open to discussing death and the end-of-life challenges we will all face. Yet, in November of 2023, my Mom was diagnosed with Lewy Body Dementia, and suddenly everything became a LOT more real. My aim is to bring awareness and understanding of the rollercoaster specific to Lewy Body. If you are supporting someone or know of someone who is dealing with dementia in any way, I hope this podcast can be a boost and support. Simply knowing you’re not alone can be the best lifeline. You can listen to the Lewy Body and Mindful Caregiving podcast on any platform you use to listen, OR you can watch it on my Youtube channel. These videos will be a front-row, visual witness to the struggles, challenges, heartbreaks, and humor I’ll experience as I learn. You may think humor is an odd statement to add here. I assure you, it’s not. Finding and cherishing the moments that make us laugh is paramount to mental health, especially when you’re faced with a disease like Lewy Body.

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32: 10 Things to Know About Lewy Body Dementia

32: 10 Things to Know About Lewy Body Dementia

In this episode of Lewy Body and Mindful Caregiving, I dive deep into the intricacies of this often misunderstood form of dementia. From understanding the symptoms to navigating through treatment opti...

29 Helmi 202421min

31: Final Comforts | End of Life Planning for Lewy Body Dementia

31: Final Comforts | End of Life Planning for Lewy Body Dementia

In this episode of Lewy Body and Mindful Caregiving, I delve deep into the often overlooked yet vital topic of end of life planning. With great passion and urge, I encourage everyone to make these lif...

22 Helmi 202410min

30: The Slow Goodbye is a Blessing in Lewy Body Dementia

30: The Slow Goodbye is a Blessing in Lewy Body Dementia

In this episode of Lewy Body and Mindful Caregiving, we discusses the concept of 'the long goodbye' in relation to caring for loved ones with forms of dementia. While it is undoubtedly a difficult jou...

15 Helmi 202415min

29: Lewy Body Dementia Caregiving Arc

29: Lewy Body Dementia Caregiving Arc

Join me for the journey through the Caregiver Arc. Understand what the caregiver arc is, where you might be in it, and how it can manifest in anxiety, depression, and eventually proficient care. Learn...

8 Helmi 202412min

28: The Paradox of Self-Care in Lewy Body Dementia Caregiving

28: The Paradox of Self-Care in Lewy Body Dementia Caregiving

In this episode of our podcast, we delve deep into the essential topic of self-care while navigating the challenges of Lewy Body Dementia caregiving. As a caregiver, I share my personal experiences, d...

1 Helmi 202412min

27: Family Gatherings with Dementia | A Survival Guide

27: Family Gatherings with Dementia | A Survival Guide

In this episode shares intimate details of a recent family gathering planned to spend meaningful time with her mom who has been diagnosed with Lewy Body Dementia. Krystal explains how she navigated th...

24 Tammi 202431min

26: UPDATE: Mom's Lewy Body Status

26: UPDATE: Mom's Lewy Body Status

Join me as I share the journey of my mother's struggle with Lewy Body Dementia. From moving her to Colorado in 2018 to her diagnosis, I've been her caregiver. On this episode, we discuss the challenge...

17 Tammi 202443min

25: Deflecting Negativity: Don't Take It Personally

25: Deflecting Negativity: Don't Take It Personally

When it comes to caregiving, it's essential not to take things personally, especially any criticism or judgment from outsiders who aren't familiar with the full context of your situation. While it's d...

11 Tammi 202415min

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