Dr. Ahmet Uluer
For more information please visit the following sites:https://thebonnellfoundation.orghttp://www.childrenshospital.org/directory/physicians/u/ahmet-uluerhttps://www.facebook.com/thebonnellfoundation/ ...
21 Marras 201928min
NIH Director Dr. Francis Collins on Trikafta and CF
Just over a week after Trikafta (Vertex Pharma) was approved by the FDA, five months ahead of schedule, five thousand people from the CF community were in Nashville, TN to attend the North American CF...
5 Marras 201926min
Singer/Musician Kevf has CF. His story will inspire you, and you'll want to attend one of his concerts.
Karma was at work when Musician Jill Jack called me to say she wanted me to meet a singer/musician named Kevf. His voice was amazing she told me, and by the way, he has cystic fibrosis. I shouldn't b...
30 Heinä 201924min
Five Feet Apart and the Story That Inspired It
The movie Five Feet Apart was inspired by Claire Wineland. The movie’s main character, Stella, showcases Claire’s charismatic and fighting personality. In this honest, raw, and often emotional conver...
28 Maalis 201938min
CF Attorney and Patient Beth Sufian
When Beth Sufian was born with Cystic Fibrosis in 1965, there were no CF treatments and no prescriptions for enzymes that she could take to digest her food. Beth has dealt with many CF challenges alon...
19 Helmi 201951min
Dylan Mortimer on CF and Art
Thirty-nine year old Dylan Mortimer embraces God, life and his family while dealing with the reality of waiting for a second double lung transplant. An artist in New York City, Dylan makes beautiful ...
6 Helmi 201927min
CF Mom Roundtable
In our first episode, Laura Bonnell is joined by Michigan CF Moms Sam and Kim. Laura has 2 daughters in their 20's with Cystic Fibrosis, Sam's 6 year old son Ethan is battling the disease, and Kim s...
2 Helmi 201941min
Living With Cystic Fibrosis Podcast Tease
Both of Laura Bonnell's daughters have Cystic Fibrosis. Laura founded the Bonnell Foundation in 2010 to bring CF patients and their families together with resources to fight this disease. It may soun...
1 Helmi 201948s
