Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.


Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.


Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."


Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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S3E11 Navigating Narcolepsy in Namibia Josephine's Journey

S3E11 Navigating Narcolepsy in Namibia Josephine's Journey

Leave a review! In this episode of Narcolepsy Navigators, hosts Kerly Bwoga and Liz are joined by Josephine Niipinge from Namibia, who shares her experience of living with narcolepsy with cataplexy. D...

15 Syys 202551min

S3E10: Fred: Finding Freedom & Life on the Road with Narcolepsy

S3E10: Fred: Finding Freedom & Life on the Road with Narcolepsy

Leave a review! This week on Narcolepsy Navigators, Kerly sits down with Fred to explore what it truly means to live with narcolepsy while navigating identity, stigma, and self-acceptance. Fred opens ...

31 Elo 20251h 2min

S3E9 Soheila’s Story: Breaking the Narcolepsy Silence in France

S3E9 Soheila’s Story: Breaking the Narcolepsy Silence in France

Leave a review! In this inspiring episode of Narcolepsy Navigators, we sit down with Soheila, a 22-year-old from the north of France, to explore what it’s like growing up with narcolepsy. Diagnosed af...

16 Elo 202551min

S3E8 Gina: Narcolepsy Through a Parent’s Eyes

S3E8 Gina: Narcolepsy Through a Parent’s Eyes

Leave a review! When Gina’s six-year-old son began showing unusual sleepiness, tantrums, and sudden collapses, she never imagined it would lead to a diagnosis of narcolepsy with cataplexy. In this hea...

9 Elo 202543min

S3E7 Hustling with Narcolepsy: Hugh’s Freelance Path

S3E7 Hustling with Narcolepsy: Hugh’s Freelance Path

Leave a review! What if managing a condition could open new doors and redefine your career path? Meet Hugh, a talented video technologist from Plymouth, UK who has navigated the unpredictable waters o...

21 Heinä 202553min

S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD

S3E6 - Rebecca's Resilience: Navigating Life with Narcolepsy and ADHD

Leave a review! In this eye-opening episode, we meet Rebecca from North Carolina, who shares her deeply personal and powerful experience living with narcolepsy type 1, cataplexy, ADHD, and a rare cond...

4 Heinä 202542min

S3E5 Lisa's Story: From Falling Asleep at Work to Entrepreneur

S3E5 Lisa's Story: From Falling Asleep at Work to Entrepreneur

Leave a review! In this heartfelt episode of Narcolepsy Navigators, Kerly sits down with Lisa Isaac, an inspiring woman living with narcolepsy type 1 and cataplexy in New Zealand. From her days as a s...

9 Kesä 202547min

S3E4 Taya’s Tale: How IH Stole My Energy— But Not My Life

S3E4 Taya’s Tale: How IH Stole My Energy— But Not My Life

Leave a review! In this episode of Narcolepsy Navigators, we meet the radiant and resilient Taya Austin, a federal employee, nonprofit leader, and auntie-turned-parent, living with Idiopathic Hypersom...

18 Touko 202537min

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