The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(250)

Provider Profiles: Dr. Leonard Weinstock and his most important patient, Max

Provider Profiles: Dr. Leonard Weinstock and his most important patient, Max

Dr. Leonard Weinstock -- gastroenterologist, prolific researcher, and clinician on a mission to cure syndromes -- returns with his grandchild, Max, to discuss MCAS, his latest research projects, the r...

5 Helmi 202524min

Lisa on living independently with POTS, blindness, and an intuitive Pomeranian

Lisa on living independently with POTS, blindness, and an intuitive Pomeranian

Since birth Lisa has lived without eyesight or normal hormones, but it wasn't until her 50's that POTS and long COVID struck.  But that hasn't stopped her from travelling, singing in a choir (includin...

26 Tammi 202544min

Dr. Derik Anderson, DC, DSN, DCP on interconnections between hypermobility, POTS, MCAS, autoimmunity, dysbiosis

Dr. Derik Anderson, DC, DSN, DCP on interconnections between hypermobility, POTS, MCAS, autoimmunity, dysbiosis

Dr. Derik Anderson discusses the interconnections between POTS, hypermobility, MCAS, gut dysbiosis, autoimmunity, plus shares some of the approaches used by his clinic to identify and treat the 20% of...

21 Tammi 202541min

"Primary care without the Gaslighting" with Danielle Lazarowitz, Dr. Jen Rubin & Dr. Kate Eisenberg

"Primary care without the Gaslighting" with Danielle Lazarowitz, Dr. Jen Rubin & Dr. Kate Eisenberg

Danielle experienced first-hand the shortcomings of the conventional primary care model for patients with complex chronic illness like dysautonomia.  So, what did she do?  She founded a better one:  "...

14 Tammi 202543min

Designing the Uplift compression device with Kishen Mitra and Sameer Kunte

Designing the Uplift compression device with Kishen Mitra and Sameer Kunte

Many POTS patients wear abdominal compression, but a team from Duke is researching ways to make it more comfortable and effective.  Kishen Mitra and Sameer Kunte are leading the team and describe thei...

8 Tammi 202542min

E238:Kristy’s Wild Ride

E238:Kristy’s Wild Ride

Kristy's POTS had her largely bedbound until her stubborn streak and competitive spirit led her to train for a 450 mile cycling race.  She recounts the training, the 35-hour-long event, the aftermath,...

31 Joulu 202433min

E237:Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber

E237:Great Resources from The Dysautonomia Project with Dr. June Bryant, DNP, APRN, CPNP-PC and Cheryl Faber

The Dysautonomia Project is a Florida-based non-profit best known for their wonderful book on Dysautonomia for both patients and providers.  But they also have other great resources including their Dy...

22 Joulu 202443min

E236:Angela on MALS surgery, vascular compressions and more

E236:Angela on MALS surgery, vascular compressions and more

Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived:  POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS.  Angela discusses ...

17 Joulu 202446min

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