The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(250)

E146: Research on Long COVID and POTS with Marie Claire Seeley

E146: Research on Long COVID and POTS with Marie Claire Seeley

The pandemic has provided a unique opportunity to study new onset POTS cases with a known trigger - COVID. The symptom similarities are striking between those with POTS and Long COVID in this Australi...

3 Heinä 202347min

E149: Tried all the recommendations? What to do next?

E149: Tried all the recommendations? What to do next?

Jill and Dr. Cathy Pederson discuss what to do after you have exhausted practitioner recommendations. There are lots of ideas provided, as well as tips on how to evaluate each potential new treatment....

27 Kesä 202351min

E148: POTS Diary with Nicole from Texas, news reporter who got a POTS story on the Today Show

E148: POTS Diary with Nicole from Texas, news reporter who got a POTS story on the Today Show

Nicole's career as a news reporter in Anchorage, AK and Raleigh, NC was cut short when she developed POTS. While her symptoms have improved since that time, she is still not able to be upright enough ...

24 Kesä 202332min

E147: Gynecological Issues & Pregnancy in MCAS with Dr. Shanda Dorff

E147: Gynecological Issues & Pregnancy in MCAS with Dr. Shanda Dorff

After issues with her own MCAS, Dr. Shanda Dorff started to investigate the impact of MCAS on people with a variety of gynecological issues like pelvic pain, heavy bleeding, etc. and during pregnancy....

20 Kesä 202357min

E145: POTS Diary with POTS Parent Leigh from Washington DC

E145: POTS Diary with POTS Parent Leigh from Washington DC

In retrospect, Leigh's daughter had symptoms since age 4, but her daughter's POTS wasn't diagnosed until she was a teenager. Leigh describes the struggle of the parent - worry, grief, questioning deci...

10 Kesä 202332min

E144: Gut motility in POTS with Dr. Linda Nguyen

E144: Gut motility in POTS with Dr. Linda Nguyen

Dr. Linda Nguyen is a gastroenterologist who sees patients with POTS, EDS, and ME/CFS. She explains gut motility issues, nausea, and how to best prepare for an appointment. Down to earth, practical ex...

6 Kesä 202333min

E143: POTS Diary with Victoria from New Jersey, a chemical engineering student and cyclist

E143: POTS Diary with Victoria from New Jersey, a chemical engineering student and cyclist

Victoria is a busy college student who commutes to school on the train daily. She is a competitive cyclist, likes to run, and hopes to contribute to the POTS community by helping to develop or enginee...

3 Kesä 202330min

E142: Unravelling Medical Complexities with Dr. Ilene Ruhoy and Dr. David Kaufman

E142: Unravelling Medical Complexities with Dr. Ilene Ruhoy and Dr. David Kaufman

Drs. Ruhoy and Kaufman specialize in people that suffer from several chronic invisible illnesses. Thinking about them as a cluster and then breaking diagnosis and treatment down into pieces can help a...

30 Touko 202347min

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