The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Jaksot(250)

E89: Anna from New York City, college dancer and photographer

E89: Anna from New York City, college dancer and photographer

Anna grew up dancing and wanted to be a pro. After a bout with mono, her legs started giving out randomly. She was diagnosed with POTS and needed to find a new dream: photography. Anna is both inspira...

1 Loka 202229min

E88: Three Types of POTS with Dr. Cathy Pederson

E88: Three Types of POTS with Dr. Cathy Pederson

Many like to think about POTS as having three subtypes - hyperadrenergic, neuropathic, and hypovolemic. We discuss these subtypes, their causes, associated symptoms, and treatments that might help. Wh...

27 Syys 202252min

E87: POTS following Long COVID and COVID vaccine injury with Dr. Sujana Reddy

E87: POTS following Long COVID and COVID vaccine injury with Dr. Sujana Reddy

Dr. Reddy is a COVID long-hauler herself. She developed POTS, and symptoms worsened each time she caught COVID. She struggled for a diagnosis, and now is a champion in the clinic and in advocacy for p...

20 Syys 202248min

E86: Jamie Lynn from Kentucky

E86: Jamie Lynn from Kentucky

It took Jamie 12 years to be diagnosed with POTS after the onset of symptoms. She had "remissions" from symptoms in the early years that allowed her to become a firefighter and EMT, positions she can ...

13 Syys 202227min

E85: Dealing with Medical Trauma with Dr. Katie Gorman-Ezell

E85: Dealing with Medical Trauma with Dr. Katie Gorman-Ezell

Many people in the POTS community have experienced medical trauma as a patient, caregiver, or sibling. Gaslighting, invasive procedures, and the chronicity of the illness can all contribute. How can y...

6 Syys 202240min

E84: Stephanie w 3 concussions and POTS from MD

E84: Stephanie w 3 concussions and POTS from MD

Stephanie was a competitive volleyball player in high school when several concussions sidelined her. Over time, POTS symptoms began to appear and the battle to get diagnosed began. It took several yea...

3 Syys 202236min

E83: Maddie and her therapy dog from Michigan

E83: Maddie and her therapy dog from Michigan

Maddie faints a lot as part of her POTS, which she developed around age 16. She describes getting and training her therapy dog and the deep pressure that helps when she blacks out. Maddie has a great ...

30 Elo 202232min

E82: Are Choline Transporters Implicated in Some POTS Patients? with Dr. Laila Schenkel

E82: Are Choline Transporters Implicated in Some POTS Patients? with Dr. Laila Schenkel

Dr. Laila Schenkel is a molecular geneticist who specializes in choline transporters. Comparing this transporter in the skin of one POTS patient with controls, she found that these transporters are fe...

23 Elo 202235min

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