Tom's Hirschsprung's Podcast

A truly remarkable journey unfolds, as Jess takes us through her life from the beginning. Jess will take us through an overview of her various conditions, including Hirschsprung's, Diversion Colitis, ...

27 Marras 202547min

We start this episode with Courtney's misdiagnosis of Encopresis instead of the Hirschsprung's she actually has. Unfortunately Courtney experienced medical gaslighting from her GP with a host of excus...

20 Marras 202547min

Donna and I chat about PGD (Pre-Implantation Genetic Diagnosis) and how she and her husband went down this route when they had their child.Donna's 20 year old step-son has genetic Hirschsprung's , so ...

13 Marras 202545min

Sydney chats to me about her 17 month old daughter, Loretta and how despite the early difficulties and uncertainties she is thriving now.Having also had multiple trips to the specialist hospital for E...

6 Marras 202541min

Ollie returns to the pod to talk about a few important subjects as well as an update on his life since we last spoke a few months ago.The episode will cover:-Fitness tips from his aerobics classesHow ...

30 Loka 202542min

Sandeep talks about his son's Hirschsprung's condition, we talk about diet, medicine and treatments.This is a slightly shorter episode but it still packed with plenty of interesting topics that I hope...

23 Loka 202535min

Stacey from Rare Patient Voice joins me to talk about the vital work that the company does in supporting rare and non-rare conditions.We chat about how the business was formed and how it has grown man...

16 Loka 202537min

Sarah talks about her son Remy and his experience with Total Colonic Hirschsprung's Disease. During the episode I also find out the family dynamic when it comes to Hirschsprung's, and why it was very ...

9 Loka 202544min