Jace on health policy, why “being a burden is a blessing”, and much more
The POTScast2 Des 2025

Jace on health policy, why “being a burden is a blessing”, and much more

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state and federal health policy, made art and much more. Hear Jace's advice and words of wisdom as someone who has expertise when it comes to ADA and accommodations.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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Episoder(250)

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness.  In t...

27 Jan 42min

Singer-songwriter Nellie Clay on “the hangover without the party”

Singer-songwriter Nellie Clay on “the hangover without the party”

Western folk singer-songwriter Nellie has recorded multiple albums and EPs, toured nationally from Alaska to Nashville, appeared on PBS’s Songs at the Center, opened for Grammy-nominated artists, and ...

20 Jan 44min

Zac Spiritos, MD, MPH on neurogastroenterology with Dr. Tania Dempsey on Mast Cell Matters

Zac Spiritos, MD, MPH on neurogastroenterology with Dr. Tania Dempsey on Mast Cell Matters

Dr. Spiritos is double board certified in gastroenterologist and internal medicine, and specializes in IBS, gut motility, POTS and the complex conditions and symptoms that go along with it.  He and Dr...

13 Jan 1h 2min

Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS

Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing ve...

4 Jan 52min

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Genetic collagen disorders and vascular issues with Heather Perne, NP-C, CWS

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling...

30 Des 202542min

Sarah from FL on life after COVID/POTS/MCAS

Sarah from FL on life after COVID/POTS/MCAS

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new gam...

21 Des 202543min

Dr. Dempsey on leading edge treatments she is finding helpful

Dr. Dempsey on leading edge treatments she is finding helpful

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light...

15 Des 20251h 4min

New (free) AI intelligence platform for patients with Dr. Jen Curtin

New (free) AI intelligence platform for patients with Dr. Jen Curtin

Dr. Jennifer Curtin is Medical Director of the RTHM clinic and former complex chronic illness patient herself, after having ME/CFS while in medical school.  Now her team has created the RTHM intellige...

9 Des 202551min

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