Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"
CAH PULSE3 Sep 2024

Season 2 | Episode 2: Lydia: "I had no idea getting married and having children was a thing"

In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the start, she had little understanding about her condition. As a young adult, Lydia reveals that she foolishly decided to test the importance of taking her medication by eliminating it altogether.

She also explains how her world took a positive turn after college when she began speaking with a therapist and ultimately the CARES Foundation. For the first time in her life she was able to regularly meet and open up with women who are living with CAH which gave her a new appreciation, understanding and excitement for her future.

Today, Lydia's story includes a loving husband, a toddler son and a drive to help others with CAH so that they know that they too can live typical, full lives filled with milestones, hope and most of all love.

Episoder(18)

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

Season 2 | Episode 4: Abby: CAH Mom? Or NASCAR Driver!

In another compelling episode, Dina and Stephanie introduce us to Abby, a mom of two small boys, one of which is her “salt waster”. Little Nash is only seven months old but he is already doing amazing...

7 Jan 202531min

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

Season 2 | Episode 3: Ryan: The Son of a Rainbow Maker

In this memorable episode, Ryan, who has seemed to manage his classic salt wasting CAH head-on with an organized, matter of fact approach, has been faced with new challenges to consider now that he is...

29 Okt 202437min

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Season 2 | Episode 1: Marc: Living Life to it's Fullest - "Nothing Holds Me Back"

Marc wasn't formally diagnosed with salt wasting CAH until he was the age of 3. Up to that point, Marc's mother had spent his infant and pre-school years simply trying to prevent him from vomiting all...

17 Mai 202437min

Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"

Season 1 | Episode 6: "The Hospital Refused to Recognize my Daughter as a Girl"

Welcome to another astonishing CAH story.  In this 6th episode of CAH Pulse, Stephanie and Dina learn the startling details of David and Brianne's CAH journey with their little girl who was born into ...

28 Mar 202438min

Season 1 | Episode 5: Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14"

Season 1 | Episode 5: Lindsey - "I Wish I Had Known More When I Was 16, 15 even 14"

"We can assume kids are gonna have questions; so create a relationship outside of CAH and the rest will follow". One of the poignant thoughts belonging to Lindsey, a warm hearted, outspoken young woma...

28 Feb 202437min

Season 1 | Episode 4: Trust Yourself - College Life with CAH

Season 1 | Episode 4: Trust Yourself - College Life with CAH

There are varying degrees of fear that parents experience while raising a child with CAH. These fears are often from the challenges of medicating their child properly to ensure their safety from a loo...

30 Jan 202433min

Season 1 | Episode 3: Lesley Part 2 - ”I Don’t Want Others To Feel Like I Did”

Season 1 | Episode 3: Lesley Part 2 - ”I Don’t Want Others To Feel Like I Did”

Despite her difficult journey, Lesley, who grew up in a children's home in England, continues her explanation of how she moved to the states and got the help she needed after living most of her life n...

19 Des 202328min

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