pt 2 my op-ed Canary UK
I AM MADELINE20 Des 2025

pt 2 my op-ed Canary UK

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)


If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing

Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA==

Fb https://www.facebook.com/share/p/1AKdjYyQ72/

Twitter https://x.com/i/status/2002061384209867072

Blue sky https://bsky.app/profile/madelinenerd.bsky.social/post/3mae64ynmms2l


It getting published so close to Christmas means having it shared by people like you is extra extra important for I'm not sure how much of an impact it has on the petition and the GoFundMe(which currently runs out mid-January which means I would have to stop life maintaining supports. that's kind of eating my brain).


For anyone you are sending it to who doesn't know about my situation, the op-ed does link to 2 articles that this publication wrote last December about my situation which gives a pretty good sense of what's the what. and of course That also means I've been verified six ways to Sunday about these things


I don't have the brain power to read this last op-ed edit, so I'll be interested hearing what you think


I got to have a flyby encounter with David Eby yesterday, who's my MLA, and once again ask for a constituency appointment which I've been begging for for the better part of almost 2 years now. Cuz that's the only way I get proper supports and can stop begging for my life on the internet🤞


I did tell him about the petition hoping that might speed up the constituency appointment process https://bit.ly/Marcia_petition . Also I did my best in a crowded loud environment to express that the petition encapsulates easy solutions. I didn't have the rain power to say how much they save the system money both directly in people like me not slamming into the ministry of Health but also indirectly by the The 36%-37% ( https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaf533/8244677?login=false )of the population getting long covid having correct instruction and support so they don't unnecessarily become disabled get removed from the tax base.


Oh well. Hopefully I'll get a chance to say it in person at a constituency appointment. 🤞


Warmest holiday wishes

Marcia AKA Madeline

#MyalgicE #meaction #christmas #longcovid #christmastime

Episoder(143)

MLA zoom and trying to be a magical TED talk

MLA zoom and trying to be a magical TED talk

The upshot of my meeting with my mla about getting me proper supports and keeping me alive, probably through a case study, and a suggestion of a stopgap in the meantime. For non-canadians, MLA stands ...

9 Jan 202320min

The best laid plans of mice and men...

The best laid plans of mice and men...

Where I think the gfm money is going to stretch until march because I was told a chunk of backdated GST money was coming in on January 5th, and that's not how it's playing out. I'm scared. I did have ...

6 Jan 202319min

Needing a Yes Virginia there's a Santa Claus moment!(my 1st acting role playing Santa)

Needing a Yes Virginia there's a Santa Claus moment!(my 1st acting role playing Santa)

It's my birthday week. I'm having all kinds of thoughts and feelings. Plus the latest on conversations with the government. Plus here is the link to the blog post of the article I mentioned https://di...

19 Des 202222min

Treatments vs Touching the Void

Treatments vs Touching the Void

A dig down on my current treatments, as well as my experience of the difficulties of accessing them. Also, an update, the article I mentioned did get a different title, and can be found on Page 6 and ...

30 Nov 202233min

Bureaucracy, Abdication, Running out of Money, OH MY

Bureaucracy, Abdication, Running out of Money, OH MY

(in the vein of lions and tigers and bears oh my) Oct 11 2022, update Really exhausted and cognitively impaired from advocation plus limiting treatments as I tried to save money but I did my best with...

12 Okt 202237min

Personal & Mayan Apocalypse
-
Millions Missing "Testimony 5 - Madeline" Part 7

Personal & Mayan Apocalypse - Millions Missing "Testimony 5 - Madeline" Part 7

This is the final instalment of The #MillionsMissing Podcast testimony from Madeline. Natalie, Diana, Rosalynde and Whitney have also shared their own, unique lived experiences of post-viral syndrome ...

20 Okt 202136min

More Red Feathered Sherlocking - Millions Missing "Testimony 5 - Madeline" Part 6

More Red Feathered Sherlocking - Millions Missing "Testimony 5 - Madeline" Part 6

Madeline talks more about her quest for solutions Picture: Madeline in her red feather boa, as she tells more of the Red feather bra saga

20 Okt 202140min

Red Feather saga Pt1 & Sherlocked Med history - Millions Missing "Testimony 5 - Madeline" Part 5

Red Feather saga Pt1 & Sherlocked Med history - Millions Missing "Testimony 5 - Madeline" Part 5

In Part 5 of her testimony Madeline says knowing all she knows about the potential for even more severe illness and debilitation, she is scared and still without supports. Picture: One of Madeline's ...

20 Okt 202137min

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