The Path with Becky Quick: Life with a Rare Disease 1/8/26

It's the story Becky Quick never thought she would tell. Her own.

As a mom to a child with a rare genetic disease, Squawk Box co-host Becky Quick dove into the hidden world of the many ways biological chance can change our lives. Thirty million Americans have a rare disease, which impact small numbers of patients. Two-thirds of those thirty million are children; 95% of rare diseases don’t have an FDA-approved treatment. But despite those eye-popping numbers, millions of people continue to suffer from diseases that often go overlooked by the broader healthcare industry. Small patient populations mean drug companies and investors aren’t willing to invest in the space, and outdated regulatory frameworks make the process of developing lifesaving treatments too slow for the families that need them.

Becky and her husband Matt Quayle share the journey of their 9-year old daughter Kaylie, who has a rare genetic condition called SYNGAP-1. Over the next several episodes of The Path, Becky will highlight the unique challenges faced by millions of Americans, put a spotlight on the bottlenecks slowing progress in the rare disease space, and talk with stakeholders who have the power to bring about change.

Join us in advancing awareness and understanding of rare diseases. Visit CNBC.com/Cures to access clips, resources, or to sign up for our weekly newsletter.

Follow Becky Quick on X: @BeckyQuick

Please share your thoughts or rare disease story in the comments, and join us on The Path.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(2039)

The G20, Spider-Man, & OpenAI’s Call on Cursor 8/31/26

In the first attack since July, the U.S. struck Iran at Larak Island. CNBC’s Dan Murphy reports on the latest exchanges from Dubai. OpenAI will end access to Cursor after SpaceX’s acquisition of the A...

31 Aug 32min

Affirm’s Q4 & Big Tech in Court: Meta & Anthropic Rulings 8/28/26

After reporting a strong Q4, Affirm’s stock surged. Affirm CEO Max Levchin discusses his view of the consumer and the economy, from his position in buy-now, pay-later platform that also offers credit ...

28 Aug 34min

Nvidia’s Blowout & an E-Shaped Economy 8/27/26

Nvidia reported a blowout quarter, issuing optimistic revenue guidance that’s pushing the stock higher. CNBC’s Kristina Partsinevelos discusses CEO Jensen Huang’s comments after the report and the res...

27 Aug 37min

Angles of AI: Flexible Power, AI in Op-Eds, & Top Talent Moves 8/26/26

Labor Secretary under President Clinton Robert Reich discusses the tariffs between the U.S. and Canada and AI’s impact on the workforce, as well as wealth taxes, the rise of populism in the U.S., and ...

26 Aug 46min

Canada’s Side of Tariffs, DoD Drones, & The Bond Market Speaks 8/25/26

Legendary investor Stanley Druckenmiller has penned a sharp op-ed criticizing Treasury Secretary Scott Bessent’s new bond buyback strategy. In “Operation Economic Outcast,” President Trump is attempti...

25 Aug 41min

USTR Jamieson Greer & a GPU Lifecycle 8/24/26

After the U.S. treasury yields surged to levels not seen in nearly 20 years, U.S. Treasury Secretary Scott Bessent announced that the Treasury would double the size of its government debt repurchases....

24 Aug 42min

Debating a California Wealth Tax & Adding AI to Therapy 8/21/26

Proposition 40, a proposed wealth tax in California, has sparked heated debate among investors, tech founders, and billionaires. Venture capitalist Ben Narasin argues that the tax and the solutions pu...

21 Aug 35min

U.S. Debt, Data Centers in the Midterms, & Coinbase CEO 8/20/26

The morning after crypto and tech leaders met President Trump at the White House, attendee and Coinbase CEO Brian Armstrong discusses the Clarity Act vote in September. Armstrong is optimistic that cr...

20 Aug 37min