A Katy for the Long Haul

A Katy for the Long Haul

Season 1 Episode 8: We Really Went off Script Join me, Beth, on this week’s episode of A Friend for the Long Haul, as I have a heartfelt conversation with my dear friend Katy. Katy (a first wave Covid long hauler from Canada) and I have known each other online since 2020. When I announced that Katy was going to be on the podcast, I said that I couldn't remember my Covid life without her. Our experience through the trials of long covid has brought us closer together and we’re sharing our stories with you. In this episode, we reflect on the early days of the pandemic when the uncertainty of prolonged symptoms left us feeling isolated and misunderstood - and that part never really went away. Katy and I discuss our shared experiences with conditions like postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS), including harrowing episodes of anaphylaxis triggered by food and medications. We discuss our advocacy efforts to raise awareness and support for long Covid sufferers, discussing how we attempt to preserve our energy and find joy in the small details of life. Don’t miss this episode filled with lols, strength, and hope.

By the way, 10kms is equal to 6.21371, I was close!!

Remember to subscribe to A Friend for the Long Haul and rate the pod on your favorite platform. Your support means the world to me and my listeners, and we’re grateful to have your ears. Thank you for listening! Katy was a speaker at the following event, hosted by Ed Yong: https://youtu.be/BjNy1rn0yPk?si=cYV37I8vgST3YVjJ and she will be back on another podcast to talk more about that - hopefully with other speakers from that event. Ed, I'd love to chat with you too! :D Here's Ed's website: https://edyong.me/ You can find Katy on on Instagram at: https://www.instagram.com/suddendeparture/ Keywords: Long Covid, chronic illness, postural orthostatic tachycardia syndrome, mast cell activation syndrome, anaphylaxis, advocacy, covid long hauler, Ed Yong, pandemic, health journey, energy preservation, spoons, spoonie life, pasc, me/cfs, mcas, pots, asthma Land acknowledgement: Katy and I would like to take a moment to acknowledge the traditional territories on which we are situated. Katy was speaking to you from the unceded traditional territories of the xʷməθkʷəy̓əm (Musqueam), Sḵwx̱wú7mesh (Squamish), and səlilwətaɬ (Tsleil-Waututh) Nations. Beth joined from the traditional territory of the Núu-agha-tʉvʉ-pʉ̱ (Ute), hinono’eino’ biito’owu’ (Arapaho), Tséstho’e (Cheyenne), Ndé Kónitsąąíí Gokíyaa (Lipan Apache), and Očhéthi Šakówiŋ communities. We honor and respect the Indigenous peoples who have lived on and cared for these lands for generations. It is important for us to recognize the histories and cultures of these nations as we continue our conversation today. Thank you.


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Episoder(59)

Long COVID Clinical Trials, Tirzepatide & Finding the Right Doctor (Dr. Wes Ely & Dr. Julia Moore Vogel)

Long COVID Clinical Trials, Tirzepatide & Finding the Right Doctor (Dr. Wes Ely & Dr. Julia Moore Vogel)

Welcome to A Friend for the Long Haul - A Long Covid Podcast! This is the last season 4 episode. I'll be taking a break for a few weeks. Season 5 is going to be about friendship, sex, and relationship...

3 Sep 48min

Clarity, Awareness, Presence, Acceptance, and Gratitude: A Conversation with Claire Jones of Sista Creative Rising and Musings of a Black Disabled Elder

Clarity, Awareness, Presence, Acceptance, and Gratitude: A Conversation with Claire Jones of Sista Creative Rising and Musings of a Black Disabled Elder

Welcome to a new episode of A Friend for the Long Haul - A Long Covid Podcast! Claire Jones, co-founder of Sista Creatives Rising and creator of Musings of a Black Disabled Elder, is a repeat guest of...

10 Aug 1h 13min

Why Stories Matter in the Fight for Long COVID Awareness with Charlie McCone - A Friend for the Long Haul Podcast

Why Stories Matter in the Fight for Long COVID Awareness with Charlie McCone - A Friend for the Long Haul Podcast

In this episode of A Friend for the Long Haul - A Long COVID Podcast, I'm joined by Charlie McCone. Charlie is a Long COVID advocate, contributor to The Sick Times, member of the Patient-Led Research ...

20 Jul 1h 3min

Dreams vs. Realities: Entrepreneurship, Chronic Illness, and Disability with Katrina Dreamer

Dreams vs. Realities: Entrepreneurship, Chronic Illness, and Disability with Katrina Dreamer

What happens when the life you planned collides with the reality of chronic illness or disability? Is it still possible to build something meaningful, even if your energy, body, and definition of succ...

13 Jul 1h 27min

Foraging with ME (Myalgic Encephalomyelitis) with April Thompson of Chronic Market

Foraging with ME (Myalgic Encephalomyelitis) with April Thompson of Chronic Market

Welcome to Season 4, Episode 11 of A Friend for the Long Haul - A Long Covid Podcast! For Week 3 of Camp Long Haul, we're exploring The Great Accessible Outdoors and this conversation changed the way ...

20 Jun 40min

Introducing Camp Long Haul - A Virtual Summer Camp for Spoonies

Introducing Camp Long Haul - A Virtual Summer Camp for Spoonies

Welcome to S04E10 of A Friend for the Long Haul - A Long Covid Podcast! I accidentally invented a virtual summer camp for Spoonies after having a small existential crisis in my Instagram stories.In th...

25 Mai 19min

The Spoonie Plant Guide: Low-Maintenance Houseplants for Spoonies ft. Megan Wages of Fancy Free Nursery

The Spoonie Plant Guide: Low-Maintenance Houseplants for Spoonies ft. Megan Wages of Fancy Free Nursery

Welcome to S04E09 of A Friend for the Long Haul - A Long Covid Podcast. This episode is part two of my catch-up chat with Megan Wages, my second-ever podcast guest, first wave Covid long hauler, co-ow...

18 Mai 36min

Running a Small Business as a Covid Long Hauler with Megan Wages

Running a Small Business as a Covid Long Hauler with Megan Wages

Welcome to S04E08 of A Friend for the Long Haul - A Long Covid Podcast! I'd like to share that this will be the first installment of a change to the podcast: shorter episodes! Longer recordings will b...

11 Mai 21min

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