Dr Emma Law - Managing patient expectations (without overpromising)

Dr Emma Law, narrating her blog written for the Dementia Researcher website.

In this blog, Emma discusses the delicate balance between encouraging participation in dementia research and being realistic about what studies can offer. She explains why people who register interest in research often expect immediate opportunities and how researchers must communicate clearly about eligibility, trial design, and uncertainty. The blog also highlights alternative ways people living with dementia and their carers can contribute to research beyond clinical trials, from public involvement groups to questionnaires and long term studies. At its core, the piece reflects on trust, transparency, and the responsibility researchers have when inviting people into the research process.

Find the original text, and narration here on our website.

https://www.dementiaresearcher.nihr.ac.uk/blog-managing-patient-expectations-without-overpromising/

#DementiaResearch #ClinicalTrials #Research #TrialDelivery

Dr Emma Law is Strategic Manager for the The Neuroprogressive and Dementia Network in Scotland. Emma has 13 years experience as a Clinical Trails Network Manager and over 35 years experience as a Nurse, many of which were spent in the delivery of Clinical Research Trials. Emma completed her PhD and is passionate about giving people living with dementia and their carers access to participate in research.

Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk

This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support.

Join our community:

https://onelink.to/dementiaresearcher

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(706)

Dr Becky Carlyle - How I Started My Own Lecture Course

Dr Becky Carlyle narrates her blog written for Dementia Researcher.In this blog, Becky reflects on creating a new lecture course for second year biomedical scientists, built around the molecular basis...

25 Jun 10min

Brandon Newman - Why data matters in human-centred dementia care

Brandon Newman narrates his blog written for Dementia Researcher.In this guest blog, Brandon Newman uses his experience as a paramedic to show how dementia care can be misread when clinicians only see...

24 Jun 8min

Rahul Sidhu - Sleep and Dementia: Should We Worry?

Rahul Sidhu narrates his blog written for Dementia Researcher.Rahul explores the relationship between sleep and dementia, asking whether a few poor nights should really worry us. Drawing on research i...

18 Jun 6min

Dr Yvonne Couch - Academia and the Sense of Self

Dr Yvonne Couch narrates her blog written for Dementia Researcher.In this blog, Yvonne reflects on why academia can become so tightly bound to identity, especially in careers where work has no clear e...

16 Jun 9min

Professor Louise Serpell - What's in a name? Amyloid, Amyloid-beta, Beta Amyloid, Amy-Lloyd

Professor Louise Serpell narrates her blog written for Dementia Researcher.Amyloid is one of the most used words in Alzheimer's research, and Louise thinks we have got into the habit of using it too l...

15 Jun 4min

Bernie McInally - Not a good advert for Dementia

Bernie McInally narrates his blog written for Dementia Researcher.In this blog, Bernie reflects on his work supporting the Scottish Dementia Brain Tissue Bank, using a telephone cognitive assessment t...

11 Jun 8min

Emily Spencer - The Hidden Work of Finishing a PhD

Emily Spencer narrates her blog written for Dementia Researcher.In this blog, Emily reflects on being around four months from her planned PhD submission date, and the amount of work still sitting bene...

11 Jun 6min

Dr Connor Richardson - Learning to Belong Somewhere New

Dr Connor Richardson narrates his blog written for Dementia Researcher.What is it actually like to start over somewhere new? After nearly a decade at Newcastle, where he did his undergraduate degree r...

9 Jun 5min