Episode 39: Childhood Apraxia of Speech and IEP Advocacy | Jordan LeVan
MEF2Cast27 Mar

Episode 39: Childhood Apraxia of Speech and IEP Advocacy | Jordan LeVan

In this episode of MEF2Cast, we sit down with Jordan LeVan to explore his powerful journey living with childhood apraxia of speech (CAS). Jordan shares what it was like growing up with a motor planning disorder that made verbal communication incredibly challenging, and how early struggles in diagnosis and therapy shaped his path forward.

Through an honest and insightful conversation, Jordan breaks down the realities of speech therapy for children with CAS, emphasizing the importance of understanding motor planning and individualized approaches to communication. He also highlights how communication disorders can impact not just speech, but learning, confidence, and social-emotional development.

A passionate advocate, Jordan dives into the critical role families play in navigating IEPs and special education systems. He shares practical strategies for parents, including understanding their legal rights, preparing for meetings, and ensuring their child receives appropriate services—whether through speech therapy or AAC tools.

Jordan also discusses his advocacy work through the Apraxia Foundation and Fighting for My Voice, organizations dedicated to raising awareness and improving support for individuals with communication disorders.

This episode is both empowering and informative for parents, educators, and anyone seeking to better understand the lived experience of CAS—and how advocacy can truly change lives.

  • Jordan’s personal experience with childhood apraxia of speech
  • Understanding CAS as a motor planning disorder
  • Challenges in speech therapy and effective approaches
  • The impact of communication disorders on education and emotional health
  • Navigating IEPs and special education advocacy
  • Legal rights under IDEA and FERPA
  • The role of AAC and alternative communication methods
  • Advocacy through the Apraxia Foundation and Fighting for My Voice

🌐 Visit our website: mef2cast.com
🛒 Check out our merch: mef2cast.printify.me
📩 Questions, comments, or interested in being a guest? Email us at: info@mef2cast.com
📘 Connect with us on Facebook: facebook.com/mef2cast

🧠 Subjects Covered:🌐 Resources:📩 Connect with MEF2Cast:

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(48)

Episode 41: Faith and Inclusion with Reverend Shannon Blosser

Episode 41: Faith and Inclusion with Reverend Shannon Blosser

In this episode of MEF2Cast, Eli talks with Reverend Shannon Blosser, a pastor, autism dad, and disability advocate serving multiple United Methodist churches in West Virginia.Shannon shares how his f...

30 Sep 1h 3min

Episode 40: From Discovery to Treatment with Dr Stuart Lipton

Episode 40: From Discovery to Treatment with Dr Stuart Lipton

Dr. Stuart Lipton, the neuroscientist and clinician who discovered MEF2C, joins MEF2Cast to discuss the science behind MEF2C haploinsufficiency syndrome and the ongoing effort to develop potential tre...

28 Aug 37min

Core Conversations: Cody and Shawnacy Bruce

Core Conversations: Cody and Shawnacy Bruce

In this Core Conversation, we revisit our conversation with Shawnacy and Cody Bruce, parents navigating the beautifully complex world of raising two daughters—one of whom, Boston, has developmental de...

24 Apr 1h 24min

Episode 38: Finding the Path with Audra and Phil Kimmett

Episode 38: Finding the Path with Audra and Phil Kimmett

In this episode of MEF2Cast, we sit down with Audra and Phil Kimmett to talk about their journey raising their son William, who was diagnosed with MEF2C haploinsufficiency syndrome (MCHS). Through a c...

13 Mar 1h 16min

Episode 37: Therapy, Parenthood, and Family with Julia Irwin

Episode 37: Therapy, Parenthood, and Family with Julia Irwin

In this episode of the MEF2Cast, we sit down with Julia Irwin, mom to Elsie, to share their family’s journey with MEF2C haploinsufficiency syndrome. Julia reflects on Elsie’s early birth and low birth...

27 Feb 1h 4min

Core Conversations: Dr Christopher Cowan

Core Conversations: Dr Christopher Cowan

In this episode of our Core Conversations series, we explore the critical role of MEF2C, a transcription factor that shapes early brain development and influences a wide range of neurological function...

6 Feb 47min

Core Conversations- Jennifer and Keith Aguirre

Core Conversations- Jennifer and Keith Aguirre

Core Conversations are revisited episodes from our archives that still stick with us and feel especially relevant, offering meaningful insight for families in the MEF2C community.In this Core Conversa...

30 Jan 3h 30min

Populært innen Vitenskap

fastlegen
tingenes-tilstand
romkapsel
dekodet-2
sinnsyn
liberal-halvtime
rekommandert
rss-paradigmepodden
forskningno
rss-nysgjerrige-norge
fjellsportpodden
rss-rekommandert
nordnorsk-historie
grunnstoffene
noen-har-snakket-sammen
vett-og-vitenskap-med-gaute-einevoll
tidlose-historier
villmarksliv
rss-bondevennen
rss-overskuddsliv