#152 - How to Advocate for Better Healthcare

#152 - How to Advocate for Better Healthcare

Kortney and Dr. Payel Gupta sit down with Nissa Shaffi, MS, Director of Advocacy at the Allergy & Asthma Network, to talk about what patient advocacy really means, how the healthcare system works as a whole, and how everyday people with allergies, asthma, and related conditions can learn to use their voice to push for real change.

What we cover in this episode is patient advocacy for allergy and asthma

  • Anyone can be an advocate. Advocacy is not just for politicians or lawyers. It is for anyone who sees a problem and wants to do something about it, from patients, caregivers, doctors, and everyday people alike.
  • Forms of advocacy, from social media to Capitol Hill. You do not have to fly to Washington to make a difference. Advocacy starts with education, storytelling, and showing up in whatever way you can.
  • How the healthcare system actually works. No single insurance company, hospital, or drug maker is to blame for everything. Understanding the whole system is what makes advocacy effective.
  • Why your story can change a law. Personal experience is one of the most powerful tools in advocacy. Real patient stories have driven landmark legislation and saved lives.
  • PALI, the Patient Advocacy Leadership Initiative. A free monthly program from the Allergy & Asthma Network that teaches patients the language, tools, and knowledge they need to advocate confidently at any level.

More resources

Bills Allergy & Asthma Network is prioritizing this year:

***********

Made in partnership with The Allergy & Asthma Network.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(180)

#178 - What Is Hereditary Angioedema (HAE)?

#178 - What Is Hereditary Angioedema (HAE)?

Hereditary angioedema (HAE) is a rare genetic condition that causes attacks of swelling in the skin, the belly, and sometimes the throat. Because it looks like an allergic reaction, it is often missed...

8 Okt 42min

#177 - Treating Chronic Hives in Special Populations (Women, Pregnancy, Kids, Older Adults & Multiple Conditions

#177 - Treating Chronic Hives in Special Populations (Women, Pregnancy, Kids, Older Adults & Multiple Conditions

Chronic hives guidelines give doctors a roadmap for treatment, but not everyone fits the same path. Pregnancy, breastfeeding, menopause, childhood, getting older, and living with more than one chronic...

1 Okt 28min

#176: SM Perspectives - The Doctor's Experience of Treating Systemic Mastocytosis

#176: SM Perspectives - The Doctor's Experience of Treating Systemic Mastocytosis

We hear a lot about the struggles patients face on their systemic mastocytosis journey, the years of normal labs, the feeling of not being believed. But have you ever wondered what that feels like fro...

25 Sep 37min

# 175 - Your Mast Cell Disorder Questions, Answered

# 175 - Your Mast Cell Disorder Questions, Answered

Mast cell disorders can feel confusing, especially with so much information floating around online and on social media. In this episode, we cut to the chase and tackle the most common mast cell disord...

17 Sep 26min

#174 - Choosing Between Chronic Hives Treatment Options

#174 - Choosing Between Chronic Hives Treatment Options

How do you decide what is the right medication for you after antihistamines are not working to manage your chronic hives? Dr. David Lang, one of the authors of the new chronic urticaria guidelines (st...

11 Sep 40min

#173 -  Busting the Biggest Biologics Myths for COPD, Asthma, and Nasal Polyps

#173 - Busting the Biggest Biologics Myths for COPD, Asthma, and Nasal Polyps

Starting a biologic can feel intimidating, especially if you are worried it means being on medication forever, or wondering if it will actually replace your inhaler or your next sinus surgery. After t...

3 Sep 33min

#172 - Why Needing Systemic Steroids for Asthma Is a Warning Sign

#172 - Why Needing Systemic Steroids for Asthma Is a Warning Sign

Needing oral steroids for your asthma is a signal, not just a setback. It could be a sign that your asthma is not actually under control, even if you feel like you're managing it day to day. Dr. Wes S...

27 Aug 39min

#171 - Rescue Inhaler Changes in the Newest Asthma Guidelines

#171 - Rescue Inhaler Changes in the Newest Asthma Guidelines

For decades, the rescue inhaler was simple: feel tight, take a puff, breathe easier. But the newest asthma guidelines have changed what's actually recommended inside that inhaler, shifting away from p...

21 Aug 42min

Populært innen Samfunn

rss-spartsklubben
giver-og-gjengen-vg
aftenpodden
konspirasjonspodden
aftenpodden-usa
popradet
rss-nesten-hele-uka-med-lepperod
rss-henlagt-andy-larsgaard
alt-fortalt
rss-espen-lee-usensurert
wolfgang-wee-uncut
grenselos
min-barneoppdragelse
synnve-og-vanessa
fladseth
rss-herrepanelet
rss-dette-ma-aldri-skje-igjen
frokostshowet-pa-p5
opptur-med-annette-og-ingeborg
rss-siktet