Terrible Tightrope

Terrible Tightrope

where I talk about the push me pull you of my mitochondria requiring rest and any hope of survival by getting governmental change or enough GoFundMe to stay alive being about me doing advocacy and on top of all of that the day-to-day living things of housekeeping and going to treatments. It's all more energy I have and yet it all needs to be done. And trying to navigate the competing needs of these things is like a terrible tightrope


Links I talked about in the episode


Sick times republish of op-ed March 20th 2025

https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884


GoFundMe

https://gofund.me/6d981312


Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

Full info in gfm update https://gofund.me/6d981312



Housekeeping GoFundMe

https://gofund.me/73aeb36e5


Petition Open for a second round of signatures

https://bit.ly/Marcia_petition


TheAtlantic article just came out that includes me(It was a gift link and now that seems to have expired but hopefully you can find a way to see it) https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-link&utm_medium=social&utm_campaign=share by @elainaplott I'm so grateful that they linked to my podcast. For Atlantic readers As it doesn't talk very much about the specifics of my situation or my disease I made a little primer for them https://open.spotify.com/show/0oNLwzI1qZvvZ51bau1aNi

Episoder(143)

pt5: pi Day squish squash continues

pt5: pi Day squish squash continues

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it...

15 Mar 15min

pt4: Friday the 13th squish squashed, The hits keep coming

pt4: Friday the 13th squish squashed, The hits keep coming

things that got even worse today. So much so that I called a friend, had a meltdown, which I talk about in the episode, and decided that I am the universe's chew toy. yeah, a little dramatic for sure....

14 Mar 30min

pt3: squish squash brick wall

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get i...

10 Mar 19min

pt2: squish squash pain meats dreams middle of the night episode

pt2: squish squash pain meats dreams middle of the night episode

at 6:00 a.m. or so and I've been awake since 2:00. I promised myself I would document all of the stuff particularly how hard things are. This is me without the coping strategies of the previous episod...

10 Mar 16min

Squish Squashed

Squish Squashed

we're a talk about the many different kinds of difficult things I'm attempting to deal with, advocacy next steps, advocacy current obstacles, and health supports obstacles. hence the title squish squa...

10 Mar 26min

Broken Glass and Other Heartaches

Broken Glass and Other Heartaches

It's Valentine's Day(you'll see I'm wearing red Because I'm a big believer and celebrating whenever possible. It does a brain good!), but unfortunately disability bias issues do not take a holiday nor...

15 Feb 22min

YouTube LIVE recording of petition presentation January 21st 2026

YouTube LIVE recording of petition presentation January 21st 2026

petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7malthough the petition has been presented we are leaving the document and its additional resources up ...

21 Jan 11min

Jan 21st Petition Presentation In Person!

Jan 21st Petition Presentation In Person!

Petition presentation is Wednesday the 21st 11:00 to 11:30 a.m. Pacific standard Time. The zoom room will be open from 10:45 to 11:45. I do explain how that will work in this episode as well as what i...

16 Jan 8min

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