Epilepsy and Us: Sibling Stories

In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the family, the emotional impact on siblings, and why support and understanding matter for everyone.

NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice.

Always consult a qualified healthcare provider for personalised support.

If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

🔗 Useful links:

Visit the Young Epilepsy website for information and support: https://www.youngepilepsy.org.uk/what-we-do/voice-support/youth-support
Find out more about the Youth Voice Network and peer support: https://www.youngepilepsy.org.uk/youth-voice-network
How to respond to seizures: https://www.youngepilepsy.org.uk/about-epilepsy/epileptic-seizures/how-can-i-help-someone-having-seizure
Safety equipment for seizures: https://www.epilepsy.org.uk/living/safety-equipment

Follow Young Epilepsy:

Facebook: http://facebook.com/YoungEpilepsy
Instagram: https://www.instagram.com/youngepilepsy/
YouTube: https://www.youtube.com/user/youngepilepsy
LinkedIn: https://www.linkedin.com/company/young-epilepsy/
TikTok: https://www.tiktok.com/@youngepilepsy

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Episoder(14)

Introduction to: Harder to Manage Epilepsy

In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’...

22 Apr 44min

Can I drive with epilepsy?

In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the reali...

1 Apr 45min

What I wish I knew when I was diagnosed (Audio only)

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about th...

3 Des 202523min

Diagnosis and Emerging Technologies (Audio only)

We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk abo...

19 Nov 20251h 17min

A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)

This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent naviga...

5 Nov 202532min

Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)

In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who sha...

14 Okt 20251h 31min

Joe's seizures (Audio only)

In this episode, we break down what seizures are and what they can look like. With help from healthcare professionals and real-life stories, we explain the different types of seizures in a way that’s ...

8 Okt 202544min