ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast
GOALS: An ALS United Podcast26 Mai

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfully advocated for millions of dollars for ALS research.

Since then, Jeff has served on the board of ALS United Mid-Atlantic and he has worked to improve the lives of people with ALS and their caregivers. Recently, Jeff helped launch ALS.Community. This new resource provides information and social connection for people with ALS from across the country and the world. Jeff joins the ALS United Mid-Atlantic GOALS Podcast to explain the benefits of ALS.Community and to encourage others to join and be part of this growing platform.

Learn more at https://als.community/

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(63)

Empowering People with ALS through Research, Advocacy, and Awareness - GOALS Podcast with Nadia Sethi

Empowering People with ALS through Research, Advocacy, and Awareness - GOALS Podcast with Nadia Sethi

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awareness, education, and research. ...

19 Mai 38min

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Frederick "Eric" Arnold, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss major advances in ALS research, genetics, and the importance of understanding TDP-43. Dr. Arnold talks about hi...

28 Apr 44min

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Jean Swidler, Executive Director with End the Legacy joins the ALS United Mid-Atlantic GOALS Podcast to talk about advocating for families with genetic ALS, advances in research, and addressing the ne...

21 Apr 26min

Progress in ALS research in 2026 with Carol Hamilton of ALS TDI - GOALS Podcast

Progress in ALS research in 2026 with Carol Hamilton of ALS TDI - GOALS Podcast

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to talk about the latest progress in ALS research and her work at ALS TDI. In this podcast video, Carol talks about the ARC study, making...

6 Apr 34min

Evolution of Assistive Technology - Alisa Brownlee on ALS United Mid-Atlantic GOALS Podcast

Evolution of Assistive Technology - Alisa Brownlee on ALS United Mid-Atlantic GOALS Podcast

Alisa Brownlee recently marked 30 years of supporting the ALS community at ALS United Mid-Atlantic. In this GOALS Podcast, she highlights the many changes in assistive technology over the years and ho...

31 Mar 41min

The Power of ALS Advocacy with PA State Representative Kyle Mullins - GOALS Podcast

The Power of ALS Advocacy with PA State Representative Kyle Mullins - GOALS Podcast

Pennsylvania State Representative Kyle Mullins joins the ALS United Mid-Atlantic GOALS Podcast to discuss his family's personal ALS story, advocacy wins for ALS care and research, connecting with othe...

23 Mar 33min

Mission and Organization of ALS United with President and CEO Jerry Dawson - GOALS Podcast

Mission and Organization of ALS United with President and CEO Jerry Dawson - GOALS Podcast

Jerry Dawson, President and CEO of ALS United, joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaboration within the ALS community, the growth and mission of ALS United, and the hope and...

17 Mar 32min

Populært innen Business og økonomi

stopp-verden
lydartikler-fra-aftenposten
dine-penger-pengeradet
rss-penger-polser-og-politikk
e24-podden
rss-borsmorgen-okonominyhetene
rss-skravla-gar
finansredaksjonen
livet-pa-veien-med-jan-erik-larssen
pengepodden-2
rss-pa-konto
pengesnakk
morgenkaffen-med-finansavisen
tid-er-penger-en-podcast-med-peter-warren
stormkast-med-valebrokk-stordalen
utbytte
lederpodden
rss-markedspuls-2
liberal-halvtime
okonomiamatorene