Bonus: The Path with Becky Quick: A Father’s Rare Determination 7/2/26

Bonus: The Path with Becky Quick: A Father’s Rare Determination 7/2/26

John Crowley does not stop at bad news. His two young children, Megan and Patrick, were babies when they were diagnosed with Pompe disease, a rare and fatal form of muscular dystrophy. Crowley changed his entire life in a race against the clock to find a treatment for his kids and reinvented his career at the same time. It was a breakthrough that inspired a Hollywood film, he tells Becky Quick for CNBC Cures. Since then, Crowley has built two biotech companies focused on rare diseases that were later acquired by larger pharmaceuticals and today leads the industry lobbying group, BIO.

Check out the video playlist of the first season of The Path: https://www.youtube.com/playlist?list=PLVbP054jv0Ko-hAZBSDwZaejelC-FMjc_

Join us in advancing awareness and understanding of rare diseases. Visit CNBC.com/Cures to access more clips, resources, or to sign up for our weekly newsletter.

Learn more about rare disease – and what to do in a diagnosis – at the National Organization for Rare Disorders: https://rarediseases.org/

Follow Becky Quick on X: @BeckyQuick

Please share your thoughts or rare disease story in the comments, and join us on The Path.


Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(2007)

Expanding Trump Accounts with IRS CEO & SSA Commissioner 07/16/26

Expanding Trump Accounts with IRS CEO & SSA Commissioner 07/16/26

Frank Bisignano serves as Commissioner of the Social Security Administration & CEO of the IRS, and now he’s being tapped to lead the expansion of Trump Accounts. In an extended interview, the Commissi...

16 Jul 30min

Jamie Dimon in Pennsylvania & Rich Kleiman in “Sports Week” 7/15/26

Jamie Dimon in Pennsylvania & Rich Kleiman in “Sports Week” 7/15/26

JPMorgan Chase CEO Jamie Dimon and Senator Dave McCormick (R-Pennsylvania) discuss the bank’s $24 million investment in Pennsylvania’s maritime industry. Both Dimon and Sen. McCormick discuss the futu...

15 Jul 32min

Bonus: Warren Buffett in Omaha 7/15/26

Bonus: Warren Buffett in Omaha 7/15/26

Warren Buffett plans to give away all of his Berkshire shares within eight years, but he has ended his 20-year-long philanthropic relationship with the Gates Foundation. In a sit-down interview with B...

15 Jul 1h 1min

Chamath Palihapitiya Goes All In on AI, SPACs, IBM, & Politics 7/14/26

Chamath Palihapitiya Goes All In on AI, SPACs, IBM, & Politics 7/14/26

Chamath Palihapitiya, host of the All-In Podcast and CEO of both Social Capital and 8090, sits down with Joe Kernen and Andrew Ross Sorkin for a wide-ranging interview. The founder and investor views ...

14 Jul 58min

The GOP’s Future, Apple Sues OpenAI, & the Musk-Altman Feud 7/13/26

The GOP’s Future, Apple Sues OpenAI, & the Musk-Altman Feud 7/13/26

After the death of Senator Lindsey Graham (R-SC), former Congressman Patrick McHenry (R-NC) discusses Sen. Graham’s legacy and the future of both the Republican and Democratic parties.  Shares of SK H...

13 Jul 38min

SK Hynix Hits the Nasdaq & Talking FIFA with Men in Blazers 7/10/26

SK Hynix Hits the Nasdaq & Talking FIFA with Men in Blazers 7/10/26

South Korean memory chip giant SK Hynix is now publicly traded on the Nasdaq, raising billions from U.S. investors. OpenAI’s Fidji Simo, second in command at the company, is leaving to manage a chroni...

10 Jul 38min

The Top State for Business & Debating Prediction Markets 7/9/26

The Top State for Business & Debating Prediction Markets 7/9/26

CNBC's Megan Cassella reports on the latest strikes between the U.S. and Iran, and Democratic Senate Nominee for Maine Graham Platner is ending his campaign. Former Republican Senator for Nevada Dean ...

9 Jul 38min

“It’s Over.” The President with NATO & the Legacy of Elie Wiesel 7/8/26

“It’s Over.” The President with NATO & the Legacy of Elie Wiesel 7/8/26

At the NATO summit in Turkey, President Trump remarked that the memorandum of understanding with Iran is “over.” CNBC’s Steve Sedgwick reports on the ground in Ankara, and Nicholas Burns, former Ambas...

8 Jul 40min

Populært innen Business og økonomi

stopp-verden
dine-penger-pengeradet
lydartikler-fra-aftenposten
rss-penger-polser-og-politikk
e24-podden
rss-borsmorgen-okonominyhetene
rss-pa-konto
pengepodden-2
morgenkaffen-med-finansavisen
tid-er-penger-en-podcast-med-peter-warren
livet-pa-veien-med-jan-erik-larssen
rss-skravla-gar
utbytte
finansredaksjonen
okonomiamatorene
liberal-halvtime
lederpodden
pengesnakk
rss-impressions-2
paretopodden