Ep. 1 - I Have Parkinson’s. Now What?

Ep. 1 - I Have Parkinson’s. Now What?

Parkinson’s doesn’t begin with tremors. It begins with fear, uncertainty, and the quiet decision of whether to tell anyone at all. In this premiere episode of This is Parkinson’s (TIP), founder Lisa Volenec sits down with Bob Sullivan, friend and co-founder of TIP, and her sister, Kris Volenec, for an honest conversation about her diagnosis, the grief that followed, and the courage it took to share her story publicly. Together, they discuss what it was like for Lisa to hide her diagnosis, grieving career changes, leaning into exercise and community support, and ultimately launching a nonprofit dedicated to elevating the real voices of those living with parkinson’s disease. This is where the journey begins. ━━━━━━ ꕤ Support the Mission: 🙏 Donate to help elevate voices and raise awareness: bit.ly/thisisparkinsonsdonate ━━━━━━ ꕤ Follow us: ➤ Instagram: www.instagram.com/thisisparkinsonsofficial ➤ Facebook: www.facebook.com/thisisparkinsonsofficial ━━━━━━ ꕤ About This is Parkinson’s: Our mission is to break stigma and build empathy through authentic storytelling that reveals the humanity of life with Parkinson’s. Founded and led by a journalist living with Parkinson’s themself, TIP brings real experiences to light to build connection, understanding, and a community of support. 🌐 Find out more: thisisparkinsons.org 📧 Contact us: thisisparkinsons.org/contact/ ━━━━━━ ꕤ 🔔 🩵 ⟢ Thank you for watching and supporting TIP. Be sure to like, subscribe, and share this episode — it helps us continue to elevate voices and build a stronger, more informed community. Learn more about your ad choices. Visit megaphone.fm/adchoices

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Episoder(15)

Ep. 15 Loving Through Parkinson’s: Kimberly Schlapman on Faith, Family and Music | This is Parkinson’s Podcast

Ep. 15 Loving Through Parkinson’s: Kimberly Schlapman on Faith, Family and Music | This is Parkinson’s Podcast

This episode of This Is Parkinson’s is straight from the heart, host Lisa Volenec sits down with Kimberly Schlapman—member of the Grammy Award–winning country group Little Big Town. Kimberly opens her...

30 Jul 37min

Ep. 14 Embracing Your Truth: Makeup, Resilience and Parkinson’s featuring Molly R. Stern | This is Parkinson’s Podcast

Ep. 14 Embracing Your Truth: Makeup, Resilience and Parkinson’s featuring Molly R. Stern | This is Parkinson’s Podcast

On this episode of This is Parkinson’s, Lisa Volenec has a profoundly moving and inspiring conversation with the incredible Molly R. Stern, a celebrated Hollywood makeup artist who recently joined the...

15 Jul 40min

Ep.13 Reaching New Heights With a Dopamine Pump. Jen Zupon’s Story | This is Parkinson’s Podcast

Ep.13 Reaching New Heights With a Dopamine Pump. Jen Zupon’s Story | This is Parkinson’s Podcast

What if a tiny device could turn the tide on your Parkinson’s journey? In this episode of This is Parkinson’s, Lisa Volenec chats with Jen Zupon, an energetic and passionate Parkinson’s advocate and m...

8 Jul 30min

Ep. 12 Choosing Joy Over Fear with Donna Parkhurst | This is Parkinson's Podcast

Ep. 12 Choosing Joy Over Fear with Donna Parkhurst | This is Parkinson's Podcast

A Parkinson's diagnosis can radically alter your world, but it doesn't mean you have to borrow trouble from tomorrow.  In this episode of This is Parkinson’s, Lisa Volenec is joined by content crea...

17 Jun 39min

Ep. 11 The Chemicals Around Us, Real Causes Of Parkinson’s: Dr. Ray Dorsey | This is Parkinson's Podcast

Ep. 11 The Chemicals Around Us, Real Causes Of Parkinson’s: Dr. Ray Dorsey | This is Parkinson's Podcast

Is Parkinson’s disease truly genetic, or is it an unnatural consequence of our environment? In this powerful episode of This Is Parkinson's, host Lisa Volenec is joined by world-renowned neurologist ...

20 Mai 37min

Ep. 10  Finding Help, Then Finding Hope. Luke and Allison’s Story | This is Parkinson’s Podcast

Ep. 10 Finding Help, Then Finding Hope. Luke and Allison’s Story | This is Parkinson’s Podcast

When the "Standard" Plan Changes: Gene Therapy, Godwinks, and the Power of Persistence. On this episode of This Is Parkinson’s, host Lisa Volenec sits down with her friend Allison Stieb for a raw, co...

13 Mai 32min

Ep.9 Original Besties: How a Parkinson's Diagnosis Changed Our Friendship

Ep.9 Original Besties: How a Parkinson's Diagnosis Changed Our Friendship

What does a lifelong friendship look like when it’s met with a life-altering diagnosis?  In this episode of This Is Parkinson’s, host Lisa Volenec sits down with her best friend of over 50 years, D...

13 Mai 33min

Ep. 8 From Caregiver to Activist: Dr. George Ackerman and a Son’s Promise

Ep. 8 From Caregiver to Activist: Dr. George Ackerman and a Son’s Promise

"We treat our animals better than our loved ones." This heartbreaking realization fueled Dr. George Ackerman’s transition from a career in law and policing to becoming one of the most dedicated Parkin...

29 Apr 37min

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