Natalia Burakowska & Danielle Petherbridge - 'Beyond the Narrative Self: Questions of Personhood in Dementia'

Season 9 begins with a presentation from our 2022 annual conference, Engaged Phenomenology II: Explorations of Embodiment, Emotions, and Spatiality. This episode features a presentation from Natalia Burakowska & Danielle Petherbridge Abstract: The notions of what constitutes self and personhood are philosophically disputed, with different accounts focusing on narrative construction, others on a pure identity pole, or different phenomenological accounts pointing to a minimal or experiential notion of self in contrast to personhood, which includes habitual, social and culture aspects. In this paper, we problematise these various accounts based on the consequences for persons with neurological illnesses, such as dementia. The paper, however, has a more important aim. We draw on research arising out of engaged phenomenological workshops conducted with carers and persons with dementia to investigate the implications of assumptions about what constitutes the self and personhood in health care settings. In recent years, the ‘person-centred’ approach to dementia, first developed by Tom Kitwood (1997), has gained prominence within healthcare settings. However, we identify ways in which the person-centred approach to dementia is limited and potentially problematic. In many settings, it relies on a narrative construction of personhood, whether prior to memory loss or reconstructed from family members (McGreevy, 2015). We suggest persons with dementia should be considered to maintain personhood even after the onset of memory loss or seeming loss of narrative and linguistic capacities. We reflect on the ways in which our engaged phenomenological workshops have informed new understandings of: i) persons with dementia as dynamic and developing persons capable of expressing themselves in embodied ways; ii) the ramifications of defining what constitutes persons in the context of dementia in terms of narrative selves iii) how such reassessments might inform the practice of carers. This research will demonstrate that a shift away from understanding persons merely as narrative constructions and equipping carers with an embodied understanding of personhood can shift some of the power and dignity back to the patient.

Biography: Natalia Burakowska is a PhD student in Philosophy at University College Dublin and an Irish Research Council postgraduate scholar. She works in the areas of phenomenology, philosophy of mind and applied philosophy. Her doctoral work is focused on a phenomenological approach to dementia that conceptualises it as both a cognitive and bodily condition, taking account of the lived experience of dementia, vulnerability and forms of ethical responsiveness and care.

Danielle Petherbridge is Ass. Professor in Philosophy at University College Dublin. Her primary research interests include phenomenology and social philosophy, medical humanities and ethics. She writes in the area of phenomenology and illness, critical phenomenology, and social philosophy. She is currently working on a research project on phenomenological approaches to dementia, and is PI of an Irish Research Council New Foundations funded project BodyDementia. She is a team member of the EU Funded Horizon 2020 grant Policy, Expertise and Trust (PERITIA) and co-founder of Health, Ethics and Narrative Ireland. Further Information: This recording is taken from our Annual UK Conference 2022: Engaged Phenomenology II: Explorations of Embodiment, Emotions, and Sociality (Exeter, UK / Hybrid) with the University of Exeter. Sponsored by the Wellcome Centre, Egenis, and the Shame and Medicine project. For the conference our speakers either presented in person at Exeter or remotely to people online and in-room, and the podcast episodes are recorded from the live broadcast feeds. The British Society for Phenomenology is a not-for-profit organisation set up with the intention of promoting research and awareness in the field of Phenomenology and other cognate arms of philosophical thought. Currently, the society accomplishes these aims through its journal, events, and podcast. About our events: https://www.thebsp.org.uk/events/ About the BSP: https://www.thebsp.org.uk/about/