Meningeal Lymphatics, Music & the Fight for Lipedema Care

Meningeal Lymphatics, Music & the Fight for Lipedema Care

This episode opens with a research moment on meningeal lymphatics and their emerging role in brain health and neurodegenerative diseases, then dives into a personal Lipedema story.

Guest Ariana Holiday shares her journey living with lipedema and Dercum's disease, her brain tumor experience, surgical treatments and recovery, the fight to get insurance coverage (including a successful Medicaid appeal), and how she uses music to heal and advocate for others.

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Episoder(48)

AI, Surgery & Swimsuits: A Lipedema Story with Dean

AI, Surgery & Swimsuits: A Lipedema Story with Dean

This episode explores recent research on AI in lymphedema diagnosis and clinical charting, and how AI tools are already changing care. It features Dean, a supportive husband who shares his experience ...

19 Aug 39min

When Lipoedema Meets Lymphedema: Understanding Fibrosis, Staging, and Treatment

When Lipoedema Meets Lymphedema: Understanding Fibrosis, Staging, and Treatment

In this episode of Lipedema Stories, hosts Lisa and Janine talk with Kylie, a tactile rep and former wound nurse, about how lipoedema differs from lymphedema, the role of fibrosis in treatment outcome...

12 Aug 54min

Lipoedema Stories: How Tirzepatide and Surgery Restored Beth’s Life

Lipoedema Stories: How Tirzepatide and Surgery Restored Beth’s Life

In this episode the hosts open with a research moment on GLP-1 therapies (including tirzepatide) and their potential to reduce inflammation, fibrosis, and support weight loss in lipoedema patients. Th...

29 Jul 43min

Keto & Lipoedema: What the Research Says

Keto & Lipoedema: What the Research Says

Hosts start with a research spotlight on ketogenic diets as a potential therapeutic option for lipoedema, then invite Carrie to share her lifelong experience with the condition—childhood onset, family...

23 Jul 41min

Mother-Daughter Lipedema Journey: Diagnosis, Surgery, and Strength

Mother-Daughter Lipedema Journey: Diagnosis, Surgery, and Strength

This episode opens with a research moment comparing lymphedema and lipedema, highlighting higher pain and neuropathic symptoms in lipedema and similar emotional burden in both conditions. Guests Alice...

15 Jul 42min

Thin Frame, Big Battle: Aurora’s Lipedema Story and Insurance Fight

Thin Frame, Big Battle: Aurora’s Lipedema Story and Insurance Fight

Hosts Lisa, Janine, and Janae discuss a recent April study showing a calorie-restricted, low-carb high-fat diet reduced body weight, leg volume, and pain in women with lipedema, then welcome guest Aur...

8 Jul 39min

New Study: Lipoedema Fat Acts Like Lipomas — Why It Matters

New Study: Lipoedema Fat Acts Like Lipomas — Why It Matters

Hosts Lisa, Janae, and Janine welcome guest Kelly to discuss a recent study showing lipedema adipose tissue has lipoma-like cellular changes and what that means for diagnosis and treatment. Kelly shar...

1 Jul 44min

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