243: An Interview With Donna Appell, Founder of the Hermansky-Pudlak Syndrome Network

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Hilary DuBrock, MD, of the Mayo Clinic in Rochester, Minnesota, on the use of artificial intelligence to diagnose pulmonary arte...

9 Nov 8min

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Theresa Strong, PhD, of the Foundation for Prader-Willi Research—which is the recipient of NORD's 2026 Abbey S. Meyers Leadershi...

2 Nov 11min

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rebecca Aune, director of education programs at the National Organization for Rare Disorders (NORD), about Rare Research Launchp...

26 Okt 10min

Larry Luxner, senior correspoondent for Rare Disease Advisor, interviews Aarush Shah, a high-school senior who, along with classmate Veer Chandwani, recently established OAI Nexus, the first public AI...

5 Okt 12min

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Flora, MD, about his new book, "Rebooting Cancer Care: Can AI Make Care More Human Again?"

28 Sep 13min

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rich Savino, a New Jersey grandfather of a boy with Duchenne muscular dystrophy. Savino, 71, is among a growing number of grandp...

14 Sep 14min

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kimberly Ku, MD, an oncologist with Illinois Cancer Center and host of the podcast "Val-You Based Care,"

9 Sep 14min