EP20: ME/CFS in Action: Transforming Chronic Illness Care

Watch Jaime Seltzer and other experts share their expertise at the INIM Conference 2024 on May 10, 2024.

Register here: https://www.nova.edu/nim/events.html

In this episode, Haylie Pomroy and Jaime Seltzer discuss the challenges faced by patients with myalgic encephalomyelitis (ME/CFS) and Post-COVID Syndrome (or Long COVID) in obtaining proper diagnosis and treatment due to the lack of understanding among medical providers.

Together, they emphasize the importance of patient-reported symptoms in diagnosing ME/CFS accurately and discuss efforts by Jaime's organization, ME Action, to improve clinical care and education.

Don't miss out on this episode as Jaime and Haylie explain the complexities of post-viral conditions like ME/CFS and Long Covid, including the relationship between viral damage, immune responses, and genetic factors. Explore the various sources of symptoms in these conditions and the need for personalized approaches to address them effectively.

Resources Mentioned:

Mayo Clinic Paper, "Diagnosis and Management of Myalgic

Encephalomyelitis/Chronic Fatigue Syndrome":

https://www.mayoclinicproceedings.org/action/showPdf?pii=S0025-6196%2823%2900402-0

Pacing and Management Guides:

https://www.meaction.net/resource/pacing-and-management-guide/

Neuroinflammation Research Review (2019) by Jaime Seltzer:

http://www.meaction.net/wp-content/uploads/2019/06/19_MEA_Revised_2019_Research_Summary_190610.pdf

Subscribe to the MEAction Newsletter:

https://www.meaction.net/subscribe/

Donate to the MEAction Network:

meaction.net/donate

Jaime Seltzer is the Director of Scientific and Medical Outreach at ME Action, a nonprofit advocating for those with chronic illnesses. She bridges communication between healthcare, government, and research sectors, representing ME Action globally. Additionally, Jaime collaborates with institutions like Stanford Medicine and Mayo Clinic Rochester on post-infectious chronic diseases research. She brings personal insight to her work as someone living with ME/CFS.

LinkedIn: https://www.linkedin.com/in/jaime-seltzer-b23abb14/

Twitter: https://twitter.com/exceedhergrasp1

Website: https://www.meaction.net/

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