Millions Missing "Testimony 5 - Madeline" Part 1
I AM MADELINE20 Okt 2021

Millions Missing "Testimony 5 - Madeline" Part 1

Madeline continues her testimony on the #MillionsMissing podcast, discussing how the interactions and impacts of multiple systemic illnesses involved with post-viral syndrome are amplified by poverty and bias. But she reiterates, even after 40 years with #ME, she is still not defined by her disease. Photo: This photo was taken along with the first one just as her acting career seemed to be blossoming, Madeline says this image reminds her of what her illness stole from her, that she wasn't always "just the poor little sick girl."

Episoder(144)

pt 6: Ides of March squish squash

pt 6: Ides of March squish squash

where I talk about how rest day is rarely just the rest day because all the stuff I've been compartmentalizing comes out and wants to be processed. which is not very restful. having my body not moving...

16 Mar 13min

pt5: pi Day squish squash continues

pt5: pi Day squish squash continues

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it...

15 Mar 15min

pt4: Friday the 13th squish squashed, The hits keep coming

pt4: Friday the 13th squish squashed, The hits keep coming

things that got even worse today. So much so that I called a friend, had a meltdown, which I talk about in the episode, and decided that I am the universe's chew toy. yeah, a little dramatic for sure....

14 Mar 30min

pt3: squish squash brick wall

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get i...

10 Mar 19min

pt2: squish squash pain meats dreams middle of the night episode

pt2: squish squash pain meats dreams middle of the night episode

at 6:00 a.m. or so and I've been awake since 2:00. I promised myself I would document all of the stuff particularly how hard things are. This is me without the coping strategies of the previous episod...

10 Mar 16min

Squish Squashed

Squish Squashed

we're a talk about the many different kinds of difficult things I'm attempting to deal with, advocacy next steps, advocacy current obstacles, and health supports obstacles. hence the title squish squa...

10 Mar 26min

Broken Glass and Other Heartaches

Broken Glass and Other Heartaches

It's Valentine's Day(you'll see I'm wearing red Because I'm a big believer and celebrating whenever possible. It does a brain good!), but unfortunately disability bias issues do not take a holiday nor...

15 Feb 22min

YouTube LIVE recording of petition presentation January 21st 2026

YouTube LIVE recording of petition presentation January 21st 2026

petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7malthough the petition has been presented we are leaving the document and its additional resources up ...

21 Jan 11min

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