The straw that has broken this camel's back
I AM MADELINE5 Aug 2023

The straw that has broken this camel's back

Today is very much the epitome of the adage *the straw that breaks the camel's back*. I thought I'll say what's happening while it's happening because this is exactly what it's like to be one of them is that millionsmissing. This is what happens when you don't have even have a MSP category of coverage for your disease, myalgic encephalomyelitis, and you end up on PWD assistance. I had a pretty hardcore meltdown after landlord's representative started making noises about my messy apartment so I'm guessing my tenancy is at risk again simply because I have never been able to have the basic doctor prescribed housekeeping myalgic encephalomyelitis needs. It's just too much. Everything is just too much. Everybody expects me to be always brave and strong and I just can't do it. No one could do it. I've hit rock bottom with a crushing thud Gofundme link for those looking for it https://gofund.me/cff39173

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Episoder(158)

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Jul 48min

Music Magic

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Jul 8min

I'm scared

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Jul 5min

blArgh

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Jul 4min

my Project Hail Mary

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Jul 13min

DOCUMENT done! woohoo

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Jul 12min

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Jun 32min

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