Coping, Denial or Both
I AM MADELINE26 Aug 2023

Coping, Denial or Both

Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update. I talk about MS and ME briefly in this ep so here are some links about that: viral origins of myalgic encephalomyelitis, some of the history of its abdication, it's relationships to MS and AIDS and particularly to Epstein-Barr which was the virus that got me https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1011523#ppat.1011523.ref025 And this one draws distinct parallels between MS and ME and shows the seriousness and deadly nature of myalgic encephalomyelitis- Myalgic encephalomyelitis/chronic fatigue syndrome and encephalomyelitis disseminata/multiple sclerosis show remarkable levels of similarity in phenomenology and neuroimmune characteristics | BMC Medicine | Full Text https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-11-205 More info on MS and Epstein-Barr Clonally expanded B cells in multiple sclerosis bind EBV EBNA1 and GlialCAM https://www.nature.com/articles/s41586-022-04432-7 Gfm for those who want it https://gofund.me/cff39173 (Also bear with me guys as I try to find the perfect location for the microphone. I have to play with levels post recording when it turned out it was too close so I hope that's okay. I don't know have the energy or brain power to rerecord. Le sigh. It's hard to have the sound quality at the level that I want it to be while hanging off a cliff by a branch like a cartoon animal trying to be a magical Ted talk to drs, politicians, bureaucrats +now ombudsman, etc while also trying to navigate scarcity and illness. So I appreciate your forbearance💗. )

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Episoder(151)

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Jun 32min

tired brain is tired

tired brain is tired

where I document what happened this week. And what it's like to just try to deal with what a euphemistically called brain fog. It's a brutality of tired brain that it's hard to convey.

31 Mai 22min

A kind of claustrophobia, disability flavor

A kind of claustrophobia, disability flavor

This is my 4th attempt to try to explain the measure of extra crunchy hard I've been experiencing right now. The best way I know to describe the extremity of overwhelm and difficulty coming at me from...

22 Mai 23min

housekeeping, deep clean part one

housekeeping, deep clean part one

Because of the amazing efforts of my friend and the GoFundMe she set up to have my apartment deep cleaned We started today! So I thought I would document that for the donators to that particular gfm. ...

12 Mai 31min

the grind

the grind

in which I grind away trying to get things done and the system grinds on me slowly destroying me In spite of my best efforts to wrangle them to logic.I'm sorry I don't have the brain power to include ...

9 Mai 21min

working outside a tiny ME energy envelope is like borrowing money from the mob, you will pay dearly!

working outside a tiny ME energy envelope is like borrowing money from the mob, you will pay dearly!

Update where you get a case in point of why it is bad bad baddy bad bad to work outside your energy envelope and when you have a long viral ME Things I mention Gfmhttps://gofund.me/6d981312Petitionhtt...

4 Mai 29min

some little pieces of good news amidst the difficulty

some little pieces of good news amidst the difficulty

mini episode where I give you a few little snippets of some good things among all of the ongoing Herculean rough and tough thingsphoto is of 12 little bouquets waiting to be given out for plant distri...

23 Apr 9min

My life, the dramedy

My life, the dramedy

documenting yet another instance of when I go out of my way to double check on the some sort of medical provider and get told incorrect information which ultimately causes me to hemorrhage energy

21 Apr 13min

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