Things I Wish I Was Told When Getting Diagnosed

Things I Wish I Was Told When Getting Diagnosed

In this episode I discuss an article from axialspondyloarthritis.net that discusses some things the auther wishes she was told when diagnosed. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). She brings up some fantastic things to consider. Here is a link to the article by Sarah Lee.

Here are the links to the YouTube channels for:

Yoga for AS

Alex Levine, Fitness Alex's Full Workout Video

All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.

Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/

Here are some links to Amazon showing some of the items I discussed.

Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. Khan

Uberlube - https://amzn.to/3i604N2

Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg

Biofreeze - https://amzn.to/33gygBS

Cane - https://amzn.to/3uN9fts

Heating Pad - https://amzn.to/3Bjd5vz

Weighted Blanket - https://amzn.to/36RCdi7

Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA

All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

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Episoder(192)

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What Might Cause Spondylitis?

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Experiencing Biologic Side Affects?

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In this episode I discuss an article from myspondylitisteam.com that discusses some things to monitor if you start a biologic. As always, this is designed to help you plan the conversations you may ne...

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Are Tattoos Safe?

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In this episode I discuss an article from Myspondylitisteam.com that discusses some things to consider about getting a tattoo. As always, this is designed to help you plan the conversations you may ne...

5 Nov 20239min

Interview With Dr Ruth Napier - Rare Disease Expert and Immunologist

Interview With Dr Ruth Napier - Rare Disease Expert and Immunologist

In this episode I interview Dr Ruth Napier, a rare disease and Immunologist who is studying Axial Spondyloarthritis. We discusses the research Dr Napier is doing regarding genetics and AS. As always, ...

29 Okt 202332min

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