Minisode 2 - Darin's Desk March 2021

Wiseberry Heritage is putting on a Race Day at Wyong Race Club on Thursday 13th May 2021. The aim of this day is to raise some much-needed funds for a young 15-year-old local girl Bobbi Jo Dillon who is living with Rett Syndrome. This is a neurological condition that affects all speech, motor, and developmental milestones. Her condition progressively gets worse every year.

Some of Bobbi’s medical conditions include Epilepsy, Scoliosis, osteoporosis, long/short heart arrhythmia, severe gastrointestinal issues i.e., reflux disorder, constipation, aspiration. There is no cure for Rett Syndrome. It is not considered hereditary or genetic, but just the luck of the draw!

It affects each girl differently, so our aim is to keep Bobbi happy and healthy for as long as we can. Girls with Rett Syndrome generally have a shortened life expectancy. Bobbi has 13 different Medical Specialists split between Sydney Children’s Hospital at Westmead and Randwick, plus her therapy (Occupational Therapy, Physio and Speech) and care teams. Bobbi cannot walk, does not talk, is completely reliant on her Parents/Siblings and care team for her day-to-day activities.

She is wheelchair-bound and the funds we are going to raise from this race day are going towards a house deposit for Bobbi Jo, that can be used towards an investment property that will give her some financial independence for her future. We need the support of the community and local businesses to donate any time, items, vouchers or products that they can. This will be used to auction off on the day. Items can be dropped off at Wiseberry Charmhaven, Wiseberry Heritage, Wiseberry Peninsula, Wiseberry Coastal or Wiseberry Kariong.

For more information please call Carley Eldridge (Marketing Manager) Wiseberry Heritage on 0400 481 659 or email celdridge@wiseberrycharmhaven.com.au

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