HOW & WHEN TO TELL YOUR CHILD

🟢 Talking with your child about his diagnosis of XXY (Klinefelter) syndrome. Listen to this short guide for suggestions on how and when to tell your child about a common genetic variation like an extra 47th X chromosome. Excellent example of the kind of practical, easy to understand information that is urgently needed as prenatal and neonatal detection of common genetic variations quickly rise.

Sources: Tartaglia, N., Cordeiro, L., Howell, S., Janusz, J. (The spectrum of behavioral phenotype in boys and adolescents 47,XXY. Pediatric Endocrine Rev. 2010); Tartaglia, N., Howell, S., Bornstein, A. (How to talk to your child about his or her diagnosis, presentation at KS&A Families Conference 2008); ACT Government Parentlink. Donor Conception (Telling your child, partenlink.act.gov.au).

© 2013 eXtraordinarY Kids Clinic. Children’s Hospital Colorodo.

Original Article (pdf download): see www.chromodiversity.com

Keywords: #XXY, #KlinefelterSyndrome, #TalkingWithYourChild #ParentConcerns #Genetics #Infertility

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An initial endowment made by a Memorial Fund in memory of Elsje Werner-Polak, gassed by the Nazis in 1943 at age 5, combined with contributions from a circle of early adopters in a handful of countries keeps us open to all and independent of any commercial interests. However these funds are limited and we need your help in order to continue our mission.

Unlike many others, our charity has no pharmaceutical industry or other type of 'for profit’ backers. Just the determination and passion to deliver clear, evidence-based information that is always free from commercial influence. Information like this is vital to change lives - and for demanding better for families, children and adults living with chromosomal differences at a time of exploding diagnoses.

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