GROWING UP WITH MICHAEL (2/2): PARENTING, POLICY, EULOGY

GROWING UP WITH MICHAEL (2/2): PARENTING, POLICY, EULOGY

🟢 "He struggled with addiction all his life but was currently on a much better path." In our last episode, Gary Glissman told the story of his son Michael, diagnosed with an Extra X at the age of 24, found dead earlier this year at 37.

In this 2nd episode of two, Gary calls for parents to be assertive advocates for the needs of their children, and for policy makers to invest in systematic early detection, information and intervention.

You’ll hear how in the future, most issues associated to X&Y chromosomes could be prevented or limited, allowing the vast majority of people with such differences to go on to live long, happy, productive lives.

The episode concludes with short eulogy to Michael found in his truck after his death, as written by Michael himself.

Warning: this episode may contain triggering content.

Gary Glissman is a senior healthcare executive who started his career as a registered nurse. From 2017 to 21 he was the the Chairman of AXYS, the leading parent advocacy Association for X&Y chromosome variations based in the USA. Few people have made a bigger difference for thousands of families and individuals with chromodiversity around the world. Gary is a member of the global Chromodiversity™ Foundation Advisory Board.

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Episoder(40)

How to Predict Autism in Extra X & Y Children (2/2)

How to Predict Autism in Extra X & Y Children (2/2)

🔴 "Early symptoms of autism spectrum disorder (ASD) in 1-8 year old children with sex chromosome trisomies (XXX, XXY, XYY), and the predictive value of joint attention*" PART 2.Research over the past...

14 Mar 202327min

Last Words With Gary Glissman

Last Words With Gary Glissman

🟢 "I'm a thunderstorm kind of guy" - Gary Glissman, 1950 - 2023.In this podcast you’ll hear two back-to-back episodes with Gary Glissman, recorded October 2022 and re-edited into a single full 45 min...

27 Feb 202343min

How to Predict Autism in Extra X & Y Children (1/2)

How to Predict Autism in Extra X & Y Children (1/2)

🔴 "Early symptoms of autism spectrum disorder (ASD) in 1-8 year old children with sex chromosome trisomies (XXX, XXY, XYY), and the predictive value of joint attention.*" Although not many medical pr...

21 Feb 202327min

"Dazzling Zebras" with Professor Lara Bloom, Pres. & CEO of The Ehlers-Danlos Society

"Dazzling Zebras" with Professor Lara Bloom, Pres. & CEO of The Ehlers-Danlos Society

🟢 "Don't ever underestimate what even 5 minutes of just listening and validating someone's experience can lead to (...). It is the best gift (a doctor) can give any patient."Historically seen as a ra...

13 Feb 202331min

Extra X & Y: Exciting Future Trajectories*

Extra X & Y: Exciting Future Trajectories*

🟢 "Great genetic progress", "exciting early neurocognitive interventions", but "grave deficiency in current testing and care models" around the world. Listen to an easy to understand 25 minute summar...

30 Jan 202326min

 Peter’s XXY Journey Part 2:  A Lifetime of Lessons

 Peter’s XXY Journey Part 2:  A Lifetime of Lessons

🟢 “Had I been diagnosed earlier, how much more could I have accomplished?”In our previous episode “Peter’s XXY Journey Part 1: a 63-Year Diagnostic Odyssey”, Peter Street from Australia compares his ...

24 Jan 202318min

 Peter’s XXY Journey Part 1: A 63-Year Diagnostic Odyssey

 Peter’s XXY Journey Part 1: A 63-Year Diagnostic Odyssey

🟢 “95% of my life has been spent not knowing of my 47,XXY. It was like getting into a boxing ring with as your opponent the invisible man. You never saw where the punches were coming from.”In this ex...

17 Jan 202330min

"Radical Inclusion," Featuring Author Jodi Samuels* (2/2)

"Radical Inclusion," Featuring Author Jodi Samuels* (2/2)

🟢 "Kindness Kills..." Despite all the talk about diversity and inclusion, why are children with genetic differences and disabilities still socially excluded? And what do we plan to do about it?In thi...

10 Jan 202329min

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