Constituency Appt + GENETIC testing in process
I AM MADELINE15 Aug 2024

Constituency Appt + GENETIC testing in process

In this episode I speak about today's provincial constituency appointment and a genetics test that is processing. I was very grateful that friend helped me get it AKA paid for it and I'm hoping it will yield some results that will in turn yield some supports from within the British Columbia healthcare system. It's a hail Mary but at the time that the special came up on this full genome testing I was so close to running out of money that I thought if it doesn't come back before I run out of money at the very least maybe it's helps other people after I'm dead. It's so hard when things get that dark. But I'm still here! Thanks to GoFundMe donors and to some help from a friend this summer. The in the episode I talked about a myalgic encephalomyelitis death in the UK via starvation due to lack of medical intervention when her myalgic encephalomyelitis impeded her ability to digest food that went through a coroner's inquest. Maeve Boothby O’Neill After the coroner's inquest https://www.theguardian.com/uk-news/article/2024/aug/09/devon-woman-died-from-malnutrition-due-to-severe-me-coroner-concludes?utm_term=Autofeed&CMP=twt_gu&utm_medium&utm_source=Twitter#Echobox=1723221888 Right after her death https://www.theguardian.com/society/article/2024/aug/10/me-patients-maeve-boothby-o-neill-inquest I also speak about a YouTube episode I did entitled *I'm afraid* https://youtu.be/gdPfr-fCfGo?si=QHHZKMLJH81Kwm_I Since I currently run out of money the end of September Here is the GoFundMe link. If you're able to share it or the podcast link please do. Every little bit helps. Little things are big things!

Episoder(143)

pt5: pi Day squish squash continues

pt5: pi Day squish squash continues

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it...

15 Mar 15min

pt4: Friday the 13th squish squashed, The hits keep coming

pt4: Friday the 13th squish squashed, The hits keep coming

things that got even worse today. So much so that I called a friend, had a meltdown, which I talk about in the episode, and decided that I am the universe's chew toy. yeah, a little dramatic for sure....

14 Mar 30min

pt3: squish squash brick wall

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get i...

10 Mar 19min

pt2: squish squash pain meats dreams middle of the night episode

pt2: squish squash pain meats dreams middle of the night episode

at 6:00 a.m. or so and I've been awake since 2:00. I promised myself I would document all of the stuff particularly how hard things are. This is me without the coping strategies of the previous episod...

10 Mar 16min

Squish Squashed

Squish Squashed

we're a talk about the many different kinds of difficult things I'm attempting to deal with, advocacy next steps, advocacy current obstacles, and health supports obstacles. hence the title squish squa...

10 Mar 26min

Broken Glass and Other Heartaches

Broken Glass and Other Heartaches

It's Valentine's Day(you'll see I'm wearing red Because I'm a big believer and celebrating whenever possible. It does a brain good!), but unfortunately disability bias issues do not take a holiday nor...

15 Feb 22min

YouTube LIVE recording of petition presentation January 21st 2026

YouTube LIVE recording of petition presentation January 21st 2026

petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7malthough the petition has been presented we are leaving the document and its additional resources up ...

21 Jan 11min

Jan 21st Petition Presentation In Person!

Jan 21st Petition Presentation In Person!

Petition presentation is Wednesday the 21st 11:00 to 11:30 a.m. Pacific standard Time. The zoom room will be open from 10:45 to 11:45. I do explain how that will work in this episode as well as what i...

16 Jan 8min

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