SUTP Research Survey
The POTScast28 Jan 2023

SUTP Research Survey

Please help us to better understand POTS! Dr. Pederson and Standing Up to POTS are launching a new online survey that takes 15-20 minutes to complete. We are seeking adults with a POTS diagnosis for this IRB approved survey. Please answer every question, and don't overthink it! We appreciate your time and effort to help us better understand the triggers, symptom load, and quality of life for people with POTS!

Find the survey here: https://www.standinguptopots.org/POTSresearchstudy

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Episoder(250)

Madeline on creating the POTSie app to help manage POTS

Madeline on creating the POTSie app to help manage POTS

In this episode, Madeline shares her experience of living with POTS, from diagnosis to the daily routines that helped her improve over time. She talks about how exhausting it can be to live with a con...

4 Okt 27min

Robert Groysman, MD on identifying mechanisms driving long COVID with the Trigger-Timing Framework

Robert Groysman, MD on identifying mechanisms driving long COVID with the Trigger-Timing Framework

After successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series, Dr. Robert Groysman ha...

29 Sep 53min

Dr. David Kaufman & Paddy Monahan on Vindara Health for Complex Patients

Dr. David Kaufman & Paddy Monahan on Vindara Health for Complex Patients

Vindara Health is the new telehealth specialty clinic created by Dr. David Kaufman and Paddy Monahan, to improve access to expert care for patients with the most complex conditions, including POTS, lo...

20 Sep 50min

Campaign against synthetic fragrances with Attorney Scott Cole and Dr. Tania Dempsey

Campaign against synthetic fragrances with Attorney Scott Cole and Dr. Tania Dempsey

In this episode, we explore the legal and civil rights issues surrounding chemical and fragrance intolerance, including what happens when people are unable to safely access hotels, businesses, and oth...

13 Sep 53min

Michelle co-founded CANrise19 to help Canada’s COVID vaccine injured

Michelle co-founded CANrise19 to help Canada’s COVID vaccine injured

Michelle was a busy mom, business owner and back country adventurer whose life changed dramatically in the 36 hours following her second COVID shot.  After finding little help locally in Canada, she t...

7 Sep 36min

Four Insights for Providers with Dr. Kirti Sivakoti, MD

Four Insights for Providers with Dr. Kirti Sivakoti, MD

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director...

30 Aug 48min

When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook

When “Inactive” Ingredients Aren’t: The ICU stay that inspired ExciIQ, with Nicole & Jeff Allen and Mike Brook

For patients with medication hypersensitivities, figuring out exactly what is in a medication can be surprisingly difficult. In episode 247 of The POTScast, data scientist Mike Brook discussed researc...

23 Aug 44min

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as part of Mast Cell Matters series

In this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on highly reactive MCAS p...

15 Aug 33min

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