MCAS in developmental & behavioral pediatrics with Donna Kirchoff, MD, FAAP: Mast Cell Matters with Dr. Tania Dempsey
Dr. Donna Kirchoff is an integrative developmental and behavioral pediatrician who works with children who have complex conditions, often involving MCAS, autism and other neuroinflammatory conditions like PANS and PANDAS. In this episode she and Dr. Dempsey discuss the role of mast cells in these conditions and what can be done to help these young patients. Dr. Kirchoff's website is here. Dr. Dempsey's website is here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
15 Apr 49min
Karen from rural Canada, both patient and healthcare practitioner
Karen is a healthcare professional in rural Canadian who had onset of confusing and scary symptoms six days after her third COVID shot. It took a year to figure out symptoms like "feeling drugged when upright, yet feeling able to solve world problems when lying down." Karen shares how she found answers and the ability to be back at work, now able to recognize POTS in her patients. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
7 Apr 36min
Cerebral Blood Flow Findings with Marie-Claire Seeley, RN, PhD
POTS patients with cognitive dysfunction had SPECT imaging done to measure the blood flow to their brains and lead author, Marie-Claire Seeley, RN, PhD, discusses the dramatic findings. You can read the published article here and learn more about the Australian POTS Foundation here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/
30 Mar 47min
Four nutrition findings with Jill Brook, MA
Jill shares four nutrition findings from general nutrition (not done on POTS patients) that might still be of interest to POTS patients, as they have been shown to affect cognitive function, mood, pain and exercise tolerance. As always, this is not medical or dietary advice. Check with your own medical team about what is right for you. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
25 Mar 35min
Lily’s transition to career and adulting
Lily was our first POTS Diaries guest (Episode #2) as a college student with severe POTS. She's back to discuss how she navigated planning a POTS-friendly career, the job hunt, cross-country move, 2 hurricanes, and maintaining her relationship with her partner -- all while managing fairly severe POTS and related conditions. Lily's smart strategies, insights and sense of humor make this episode extra valuable and fun. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
15 Mar 39min
Ayurvedic approach with Gillian Ehrlich, DNP, ARNP: Mast Cell Matters with Dr. Tania Dempsey
Gillian Ehrlich's NeuroVeda Clinic in Seattle treats complex patients with a wide variety of treatments including peptides, Ayurvedic medicine, diet and nutrition, imaging, mind-shifting therapeutics, plasmapheresis, and more. In this episode, Dr. Tania Dempsey interviews Gillian about her Ayurvedic approach and also her experiences with plasmapheresis. More information about Gillian and her clinic is available here. Dr. Dempsey's website can be found here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
11 Mar 55min
Drug excipients and label inconsistencies with Data Scientist Mike Brook
Patients with sensitivities to medications or their inactive ingredients ('excipients') often use NIH's DailyMed website to look up excipients or alternative drug formulations that might work better for them. This is important as 38 "inactive" ingredients have been reported to cause allergic reactions at the doses found in medications. Data Scientist Mike Brook explains the research project that found excipient list inconsistencies in ~40% of DailyMed drug product labels, and what sensitive patients can do about it. The articles discussed are here and here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
4 Mar 35min
Mechanisms and treatment of neuropsychiatric symptoms with Tena McLarty PMHNP-C, FNP-C
POTS and related conditions are not psychiatric conditions, but can have neuropsychiatric symptoms. Nurse Practitioner Tena McLarty PMHNP-C, FNP-C specializes in POTS and comorbid conditions, with a particular interest in neuropsychiatric symptoms both from the conditions themselves and as possible side effects from drugs commonly used in these conditions. In this episode she shares the research findings - plus her personal experiences - relating to common symptoms, underlying mechanisms, potential psychiatric side effects of common drugs used for POTS, her advice for patients, and much more. You can follow Tena here on Instagram. You can see her professional profile here. You can find her website here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
25 Feb 55min
