There was an old lady who swallowed a fly AKA The perils of lack of supports
I AM MADELINE31 Aug 2024

There was an old lady who swallowed a fly AKA The perils of lack of supports

In this episode I talk about a recent eye infection that is very much living in the land of the song *THERE WAS AN OLD LADY WHO SWALLOWED A FLY* aka lack of supports creating a domino effect of problems for some reason the update to the Spotify for a podcasters app is not letting me add the photo I spoke of in the episode to this episode but you can see the photo of me doing my impression of a b-movie creature about to chase the villagers through the streets(AKA after the ER and before the antibiotics) on the latest update of the GoFundMe -the link is below Here is that blurb I spoke about in the episode that my advocate helped me write that it makes sharing what's happening to me easier for you Madeline is still valiantly struggling for her life and needs your help to get her to live long enough for a currently confidential in-development advocacy initiative to launch, tentatively spring 2025. Ways to help: -Share the gofundme - https://www.gofundme.com/f/MadelinesMiracle -Donate to the gofundme -Let Liza or Madeline know of any media sources or social media advocates that would be willing to tell her situation's new developments: that neither a human rights tribunal or supreme court Charter Challenge is possible for lack of supports to people with disabilities and/or no category of coverage for her disease, myalgic encephalomyelitis (ME)/Long-Viral this information was given to Madeline by multiple human rights lawyers and the BC Ombudsperson who have told her that all these issues are considered political, thus meaning no recourse is available For your reference and verification of her situation, here is a link to the twitter thread that includes the article by Ricochet Media and can be shared on instagram and facebook: https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19

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Episoder(158)

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Jul 48min

Music Magic

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Jul 8min

I'm scared

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Jul 5min

blArgh

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Jul 4min

my Project Hail Mary

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Jul 13min

DOCUMENT done! woohoo

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Jul 12min

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Jun 32min

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