The Mito Podcast #44 - Nov 20, 2021 - Holidays

Megan and Ashley have a great talk with April, who was diagnosed as an adult with a mitochondrial disease. She is a true Mito warrior and is currently writing her memoir. Find out more: https://www.facebook.com/chronicallyapril and https://aarguin.wixsite.com/website This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

26 Apr 202233min

Ashley and Megan talk to Sebastien of the Flowering Hope Foundation. His son, Jagger, has Leigh Syndrome, a mitochondrial disease. Sebastien shares his story, and his work in promoting information and research on the use of medical cannabis, which has been instrumental in reducing the number of daily seizures that Jagger suffers. This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

4 Apr 202251min

Megan and Ashley talk to Rachel from Cecily's Closet. This is an amazing organization that collects and donates equipment and supplies to families of special needs children. It is named in honor of Rachel's daughter Cecily. Find out more at https://www.cecilyscloset.org/ This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

19 Mar 202237min

Have you registered or donated to the 2022 Mito 5K?! This is the 10th year for this amazing event has raised over $800,000 for mitochondrial disease research! Ashley and Megan give a quick update on this great family event that they help organize and put on each year. Find out more at https://p2p.onecause.com/mito5k This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

13 Mar 202215min

Ashley and Megan talk to Ashley's sister, Jamila! She discusses her role with the WorkAbility program in the San Diego Community College District. This amazing program provides vocational assistance and services to adults with disabilities looking to obtain employment during and after their education. "WorkAbility III teaches students the skills that will help them transition to meaningful careers and realize their potential." Find out more: https://www.sdccd.edu/about/departments-and-offices/student-services-department/dsps/workability/ A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

26 Feb 202248min

Happy New Year! Megan and Ashley talk to Ryan and Sam who have an amazing lifelong friendship. Ryan is from Extreme Motus, a company that makes all-terrain wheelchairs. Ryan has taken his best friend Sam, who has cerebral palsy, on many off-road adventures with his "X3" all-terrain chair - they share their adventures frequently on Youtube, and Instagram and Facebook. Megan's son Troy also has an X3 and loves it! Enjoy! Follow Extreme Motus: https://www.youtube.com/c/ExtremeMotus http://extrememotus.com https://www.instagram.com/extrememotus/ A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

20 Jan 202230min

We’ve all suffered through loss and grief after the death of a loved one or family member. In this special episode of The Mito Podcast Megan and Ashley explore the history and traditions of Dia de los Muertos with Ashley’s cousin, Laurie. As Laurie puts it, the goal of these traditions is to “bring a little bit of light to a very challenging time” and help us find solace as we remember our family and friends who have passed on. A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community. Also available on Apple, Google, Spotify and YouTube. http://mitopodcast.com

26 Okt 202130min