Episode 3 - Autism and I/DD Housing, with Scott Mendel and Ashley Kim Weiss of Together for Choice

Episode 3 - Autism and I/DD Housing, with Scott Mendel and Ashley Kim Weiss of Together for Choice

What are the different types of housing for autistic and I/DD adults? What's an ICF? What are Home and Community-Based Services? Why are waitlists so long? Why do some disability rights advocates attack freedom of choice in housing? Scott Mendel and Ashley Kim of Together for Choice put it in perspective, hosted by Jill Escher.

Highlights:

• What are ICFs? Is there really an entitlement? Sort of, but it may be far away and of low quality. What different kinds of ICFs are out there? The real reason that state-run ICFs are more expensive than private ICFs.

• What is HCBS? Why are there such long waitlists in most states? The problem of the lack of political will.

• Why we need a person-centered full continuum of care rather than arbitrary rules about housing settings.

• Absurd state rules that place autistic clients in more costly and inappropriate settings.

• How severely autistic clients with HCBS can become isolated and disconnected from the community.

• The severe staffing crisis seen across the country.

• The need for families to meet with legislators and share their stories. Advocacy matters.

Links:

Together for Choice: http://togetherforchoice.org

NCSA National Grassroots Network: https://www.ncsautism.org/nationalnetwork

About

Autism Confidential (AutismConfidential.org) is a production of the National Council on Severe Autism. NCSAutism.org.

All views expressed on Autism Confidential are those of the individual speakers, and do not necessarily reflect the views of NCSA or its board of directors. The podcast is for informational purposes only and does not offer any medical or legal advice.

Produced by Lee Syatt. Do you want to start a podcast? Go to www.leesyattconsulting.com

Episoder(58)

Episode #058 - Crisis Care for Severe and Profound Autism

Episode #058 - Crisis Care for Severe and Profound Autism

Arzu Forough, President and CEO of Washington Autism Alliance, is our guest discussing crisis care for severe/profound autism. She discusses medical necessity, governing policies such as Medicaid, men...

3 Jun 20241h 18min

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

Episode #057 - Standing Up for Severe Autism on Social Media: Eileen Lamb

National Council on Severe Autism Webinar, May 15, 2024 We feature Eileen Lamb, one of the most visible and prolific social media personalities in the autism world. Eileen is an author, blogger, photo...

3 Jun 20241h 13min

Episode #056 - Sounding Off About Autism Month

Episode #056 - Sounding Off About Autism Month

Autism Confidential returns to its usual podcast format for a discussion about April, Autism Month featuring host Jill Escher and guest Thomas McKean, a pioneering autism self-advocate. Jill and Tom d...

22 Apr 202459min

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Episode #055 - Karen Fessel: Insurance Coverage for Severe Autism

Karen Fessel, executive director of the Mental Health and Autism Insurance Project, returns to our National Council on Severe Autism webinar series to explain how insurance coverage works for children...

22 Apr 20241h 17min

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Episode #054 - Discrimination by Design: How Policies Threaten the Most Severely Disabled

Featuring: Ashley Kim, Together for Choice Jackie Ceonzo, SNACK* NYC Note: For a video recording with slides, please see NCSAutism.org/webinars. There is a nationwide shortage of long term supports ...

4 Mar 20241h 23min

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

Episode #053 - Seizures and Epilepsy in Severe and Profound Autism

This episode features Stephanie M. Morris , MD, is Medical Director, Center for Autism Services, Science and Innovation (CASSI) At Kennedy Krieger Institute, Baltimore. She is a neurologist with speci...

1 Mar 20241h 22min

Episode #052 - National Council on Severe Autism Webinar, February 15, 2024

Episode #052 - National Council on Severe Autism Webinar, February 15, 2024

National Council on Severe Autism Webinar, February 15, 2024, featuring: Jill Escher, Escher Fund for Autism Walter Zahorodny, PhD, Rutgers University This webinar examines the most important and poor...

19 Feb 20241h 41min

Episode #051 - The Reauthorization of the Autism CARES Act

Episode #051 - The Reauthorization of the Autism CARES Act

This episode features Alison Singer, president of Autism Science Foundation, and Craig Snyder of IKON Consulting, discussing why the Autism CARES Act should be reformed before it is re-authorized. Thi...

12 Feb 20241h 18min

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